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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Information supplied by g-text.
Buy the print version of the catalogue for only £10 from this
address: · SACRAL AGENESIS contact Contact a Family under Family · SAETHRE-CHOTZEN SYNDROME see under Craniofacial · SAGGITAL SYNOSTOSIS see under Craniofacial · SALAAM SEIZURES see under West Syndrome · SAMARITANS THE SAMARITANS – 10 The Grove, Slough, SL1 1QP. Helpline (local call rate) 0345 90 90 90. Tel 01753 216 500/Fax 775 787. Nationwide, non-religious, non-political 24 hour confidential support. jo@samaritans.org www.samaritans.org.uk · SANFILLIPO SYNDROME see Society for Mucopolysaccharide Diseases under Metabolic Diseases · SARCOIDOSIS see under Lung · SCABIES contact Community Hygiene Concern under Head Lice · SCHEIE SYNDROME contact Society for Mucopolysaccharide Diseases under Metabolic Diseases · SCHILDER’S DISEASE see under Adrenoleukodystrophy · SCHEURMANN DISEASE see under Perthes Disease · SCHIZOPHRENIA NATIONAL SCHIZOPHRENIA FELLOWSHIP – 28 Castle Street, Kingston upon Thames, KT1 1SS. Tel 020 8547 3937/Fax 8547 3862. Information, training, fundraising, publications. Advice 020 8974 6814. SCHIZOPHRENIA ASSOCIATION OF GB – Bryn Hyfryd, The Crescent, Bangor, LL57 2AG. Tel 01248 354 048. · SCHOOL PHOBIA see under Bullying · SCLERODERMA see under Raynaud's · SCOLIOSIS THE SCOLIOSIS ASSOCIATION – 2 Ivebury Court, 323-327 Latimer Rd, London, W10 6RA. Tel/Fax 020 8964 5343. Helpline 020 8964 1166. Contact register, regional support, meetings and publications, for parents, professionals and schools. · SEASONAL AFFECTIVE DISORDER SAD ASSOCIATION – J Eastwood, PO Box 989, Steyning, BN44 3HG. Local contacts, advice and information, newsletter, light-box hire. · SECOND ARCH SYNDROME contact Treacher-Collins Syndrome Support Group · SED TARDA contact Perthes Association and Restricted Growth Association under Growth · SEPARATED see under Divorce/Separation · SERIOUSLY ILL CHILDREN see also under Family and Penpal ACTION FOR CHILDREN WITH LIFE-THREAT-ENING CONDITIONS – Ms Stella Elston, 65 St Michael’s Hill, Bristol, BS2 8DZ. Tel 0117 922 1556/Fax 930 4707. Campaigns on behalf of families caring for children with life-threatening conditions. ACTION FOR SICK CHILDREN – 29/31 Euston Road, London, NW1 2SD. Tel helpline Mon-Thurs 9am-5pm 020 7833 2041. Aims to improve standards of health care for all children both in hospital and at home. Parent advice line, library/information service. DREAMS COME TRUE – D’Arcy Myers, York House, Knockhundred Row, Midhurst, West Sussex, GU29 9DQ. Aims to try and fulfil the dreams of seriously/terminally ill children. NIGEL CLARE NETWORK TRUST – 85 Moorgate, London, EC2M 6SA. Tel 020 7256 8313/Fax 020 7638 8648. Offers practical advice to families caring for life-threatened children and youngsters. E-Mail roger@nigelclare.org http://www.nigelclare.org RAINBOW TRUST – Claire House, Bridge Street, Leatherhead, Surrey, KT22 8BZ. Tel 01372 363 438/Fax 01372 363 101. Family centred care for children with a life limiting or terminal illness. REACT – Christopher Pulford, St Lukes House, 270 Sandycombe Road, Kew, Richmond, TW9 3NP. Tel 020 8940 2575/Fax 8940 2050. Financial support for equipment not available on the NHS for potentially terminally ill children. Mobile home holidays. SICK CHILDREN'S TRUST – Floor 5, 39-40 Eagle Street, London, WC1R 4AP. Tel 020 7404 3329/Fax 020 7831 3182. Provides ‘Home from Home’ accommodation for the families of sick children at major paediatric centres across the country. ZOE’S PLACE BABY HOSPICE – Anne Johnson, Life Health Centre, Yew Tree Lane, West Derby, Liverpool, L12 9HH. Tel 0151 228 0353/Fax 252 2280. Respite and palliative care in a home environ-ment for babies 0-4 years with multiple special needs. · SEVERS DISEASE contact Perthes Association · SEXUAL ABUSE – CHILDREN ISO-SAC (In Support of Sexually Abused Children) – PO Box 526, London, NW6 1SU. Tel 020 7284 2125. MOSAC (Mothers of Sexually Abused Children) – 141 Greenwich High road, Greenwich, London, SE10 8JA. Helpline 0800 980 1958. www.mosac.org.uk · SEXUAL HARASSMENT/ABUSE - FEMALE ACTION AGAINST ABUSE OF WOMEN AND GIRLS – PO Box 124, Bognor Regis, West Sussex, PO21 5JT. Tel 01243 860 003. Information and support to females subjected to, and those working or researching on all forms of abuse. · SEXUAL PROBLEMS SEXAHOLICS ANONYMOUS – PO Box 6376, London, N2 0TZ. Tel 07000 725463. Support for those affected by self-destructive sexual thinking and behaviour. www.sa.org saico@sa.org · SEXUALLY TRANSMITTED DISEASE – MALE see under Men’s Health · SHINGLES AND PHN SHINGLES SUPPORT SOCIETY – Marian Nichol-son, 41 North Road, London, N7 9DP. Tel 020 7607 9661/Helpline 020 7609 9061. Information including. fully referenced drug treatment sheets for GPs. · SHOPLIFTING CRISIS COUNSELLING FOR ALLEGED SHOP-LIFTERS – PO Box 147, Stanmore, Middlesex, HA7 4PQ. Tel 020 8954 8987 or 020 7722 3685/Fax 020 8202 5787. Advice for those accused of shoplifting. · SHPRINTZEN SYNDROME see under Chromosome 22q 11 · SHWACHMAN SYNDROME SHWACHMAN SYNDROME CONTACT GROUP – Mrs Pauline Taffley, 23 Sutherland Grove, Perton, Wolverhampton, WV6 7PA. Tel 01902 745 545. · SIALIC ACID STORAGE DISEASE contact Society for Mucopolysaccharide Diseases under Metabolic Diseases · SIALIDOSIS contact Society for Mucopolysacch-aride Diseases under Metabolic Diseases · SICKLE CELL SICKLE CELL AND THALASSAEMIA CENTRE – Lola Oni, 122 High Street, Harleseden, London, NW10 4SP. Tel 020 8961 9005/Fax 020 8453 0681. www.sickle-thalassaemia.org brentsickle@freeuk.com SICKLE CELL AND THALASSAEMIA INFORM-ATION CENTRE – Phyllis Dyer, Homerton Hospital, Homerton Row, London, E9 6SR. Tel 020 8510 7412 /7413/Fax 510 7323. Social and health care support, information and counselling. Training and education. SICKLE CELL SOCIETY – 54 Station Road, London, NW10 4UA. Tel 020 8961 7795/Fax 020 8961 8346. Offers upport, information and advice. · SILVER-RUSSELL SYNDROME contact Silver-Russell Syndrome Support Group c/o Child Growth Foundation under Growth · SINGLE PARENTS GINGERBREAD – 7 Sovereign Court, Sovereign Cl, London, E1W 3HW. Tel 020 7488 9300/ Fax 7488 9333. www.gingerbread.org.uk office@gingerbread.org.uk . HOLIDAY ENDEAVOUR FOR LONE PARENTS – 57 Owston Road, Carcroft, Doncaster, DN6 8DA. Tel 01302 726891/Fax 01302 365 139. Low cost holidays for lone parent families. Costs are subsidised if with special needs and a referral from a statutory organisation. 9x6 ssae + 2 1st class stamps please. NATIONAL COUNCIL FOR ONE PARENT FAMILIES – 255 Kentish Town Road, London, NW5 2LX. Freephone 0800 018 5026/Fax 020 7482 4851. ONE PARENT FAMILIES SCOTLAND – 13 Gayfield Square, Edinburgh, EH1 3NX. Tel 0131 556 3899/Fax 557 9650. Advice for lone parents. SINGLE PARENT ACTION NETWORK – Annie Oliver, Millpond, Baptist Street, Easton, Bristol, BS5 0YW. Tel 0117 951 4231/Fax 935 5208. Advice and information for all single parents in the UK. SINGLE PARENT TRAVEL CLUB – Linda Bushell, 125 Hicks Avenue, Greenford, Middlesex, UB6 8HD. Tel 020 8578 9739. National club for single and access parents to share holidays and short breaks. · SKELETAL DYSPLASIA also contact Ollier Disease Self-Help Group SKELETAL DYSPLASIA GROUP –The Secretary, 2 Dale Close, Oxford, OX1 1TU. Tel 01865 727 525. · SKIN DISORDERS see under Dermatological Problems · SKIN LASERS see IDGC under Disfigurement · SJOGREN'S SYNDROME SJOGREN'S SYNDROME ASSOCIATION – Madeline Ford, Unit 1, Manor Workshops, Nailsea Wall Lane, Nailsea, Bristol, BS48 4DD. Tel 01275 854 215. For sufferers, their families and health care professionals. bssassociation@compuserve.com · SLEEPING SLEEP MATTERS – Medical Advisory Service, PO Box 3087, London, W4 4ZP. Tel 020 8994 9874. THE SLEEP COUNCIL – High Corn Mill, Chapel Hill, Skipton, BD23 1NL. www.sleepcouncil.org.uk · SLEEP APNOEA see under Snoring · SLEEPING PILL ADDICTION see TASHA under Tranquilliser Withdrawal · SLY SYNDROME contact Society for Mucopoly-saccharide Diseases under Metabolic Diseases · SMITH-LEMLI OPITZ SYNDROME contact Contact a Family under Family · SMITH-MAGENIS SYNDROME SMITH-MAGENIS SYNDROME CONTACT GROUP – Mrs Olga de Chassey, PO Box 18802, London, SW7 3ZQ. Tel 020 7373 6562. · SMOKING NICOTINE ANONYMOUS – PO Box 1516, London, SW1V 4RP. Tel 01932 893 173 for local contacts. National organisation. QUIT – 170 Tottenham Court Road, London, W1P 0HA. Tel 020 7388 5775. Quitline on 0800 002 200. Helping Smokers to Quit. Also Break Free pack for teachers to encourage teenagers to quit/not start. · SNORING/SLEEP APNOEA BRITISH SNORING & SLEEP APNOEA ASSOC-IATION – 1 Duncroft Close, Reigate, RH2 9DE. Tel 01737 245 638/Fax 248 744. Helpline 0800 0851097. www.britishsnoring.co.uk admin@britishsnoring.co.uk SLEEP APNOEA TRUST – 7 Bailey Close, High Wycombe, Buckinghamshire, HP13 6QA. Tel 01494 439 719. Support for patients and their families. · SOLVENT ABUSE RE-SOLV – 30a High Street, Stone, Staffordshire, ST15 8AW. Tel 01785 817 885/Fax 01785 813 205. Helpline 0808 800 2345 for actual/suspected solvent abuse. Literature and videos. www.re-solve.org SOLVENT ABUSE RESOURCE GROUP – 53 James Street, Blackburn, BB1 6BE. Tel 01254 677 493/Fax 01254 677 503. sarg@airtime.co.uk · SOTOS SYNDROME Sotos Syndrome Support Group c/o Child Growth Foundation under Growth · SPASMODIC TORTICOLLIS see The Dystonia Society under Dystonia · SPECIAL EDUCATIONAL NEEDS see also under Education, AFASIC under Speech, Left Handed Company under Left Handed and Penpals CHATBACK TRUSTS – 6 St Mary’s Crescent, Royal Leamington Spa, Warwicks, CV31 1JL. Tel 01926 888 333. Global network allows children with special needs to communicate through the internet. CHILDREN’S TRUST (THE) – Tadworth Court, Tadworth, Surrey, KT20 5RU. Tel 01737 357 171. Aims to provide care, treatment and education for children with exceptional needs/disabilities. DISABILITY CARE REGISTER (DCR) – Valley Court, Croydon, Nr Royston, SG8 0HF. Freephone 0800 389 2077. Computerised search for residential or respite care provision for a person with learning/physical disability or mental health problem. ELIZABETH FITZROY HOMES – Caxton House, Lower Street, Haslemere, GU27 2PE. Tel 01428 656 766/Fax 643 262. Residential homes/day resource centres for those with severe learning disabilities. I CAN – Barbican Citygate, 1-3 Dufferin Street, London, EC1Y 8NA. Tel 020 7374 4422/Fax 7374 2762. 3 residential schools for children with speech and language difficulties, nursery programme, secondary language resource unit, training centre. IPSEA – John Wright, 6 Carlow Mews, Woodbridge, IP12 1EA. Tel/Fax 01394 380 518. Free and independent support and advice to parents of children with SEN and LEA legal duties towards such children. Advice line 0800 0184016. NASEN – THE NATIONAL ASSOCIATION FOR SPECIAL EDUCATIONAL NEEDS – Nasen House, 4-5 Amber Business Village, Amber Close, Amington, Tamworth, B77 4RP. Tel 01827 311 500/Fax 01827 313 005. Promotes the development of SEN children. National network of 65 branches. NATIONAL PORTAGE ASSOCIATION – 127 Monks Dale, Yeovil, BA21 3JE. Tel 01935 471 641. Supports families of children with special needs by promoting portage educational home visiting services. NATIONAL FEDERATION OF GATEWAY CLUBS – 123 Golden Lane, London, EC1Y 0RT. Tel 020 7454 0454/Fax 7608 3254. Personal development through leisure provision and independence. NETWORK 81 – John Pashley, 1-7 Woodfield Terrace, Stansted, Essex, CM24 8AJ. Tel 01279 647 415/Fax 01279 816 438. Offering practical advice on all aspects of obtaining the best possible education for any child with SEN. PARENTS FOR INCLUSION – Unit 2, 70 South Lambeth Rd, London, SW8 1RL. Helpline 020 7582 5008/Admin 7735 7735. For families who want their disabled children included in mainstream schools. Helpline for parents of children with SEN or EBD. PEOPLE FIRST – David Cohen, Instrument House, 207-215 Kings Cross Road, London, WC1X 9DB. Tel 020 7713 6400/Fax 7883 1880. Self advocacy organisation run for and by people with learning difficulties. Sae for information and membership. RATHBONE – 4th Floor, Churchgate House, 56 Oxford Street, Manchester, M1 6EV. Tel 0161 236 5358/Fax 0161 238 6356. Advice line for parents of children with special needs 0800 917 6790. REACH – California Country Park, Nine Mile Ride, Finchampstead, Berkshire, RG40 4HT. Tel 0118 973 7375/Fax 0118 973 7105. Helpline (local rate) 0845 604 0414. Reference and information service for those children whose disability affects their ability to read. reach@reach-reading.demon.co.uk STATUS EMPLOYMENT – Airport House, Purley Way, Croydon, Surrey, CR0 0XZ. Tel 020 8681 3178/Fax 8686 2469. Support for people with learning difficulties to find & keep paid employment. http://www.tickit.com/status-employment UK SPORTS ASSOCIATION FOR PEOPLE WITH LEARNING DISABILITY – Ground Floor, Leroy House, 436 Essex Road, London, N1 3QP. Tel 020 7354 1030/Fax 020 7354 2593. Promotes and co-ordinates sport and recreational opportunities for all people with learning disability in the UK. UNITED RESPONSE – 113/123 Upper Richmond Road, Putney, London, SW15 2TL. Tel 020 8246 5200/Fax 020 8780 9538. 70 locations providing community based residential care for adults with learning disabilities and mental health problems. www.united-response.co.uk info@united-response.co.uk VALUES INTO ACTION – Oxford House, Derby-shire Street, London, E2 6HG. Tel 020 7729 5436/ Fax 020 7729 7797. Campaign with people who have learning difficulties. www.viauk.org general@viauk.org · SPEECH see also under Stammer AFASIC – 69-85 Old Street, London, EC1V 9HX. Tel 020 7841 8900/Helpline 0845 355 5577. Local groups, workshops, seminars, publications, activity weeks and weekends. info@afasic.org.uk AIDIS TRUST – 1 Albany Park, Cabot Lane, Poole, BH17 7BX. Tel 01202 695 244/Fax 695 322. Micro-electronic equipment/computer systems for communi-cation/education, independence for people with severe physical disabilities. www.aidis.org info@aidis.org PAGET GORMAN SOCIETY – R Newey, 3 Gipsy Lane, Headington, Oxford, OX3 7PT. Tel 01865 761 908. Helps young people with speech impairment to communicate using Paget Gorman Signed Speech. Training for therapists, teachers and parents. SPEAKEASY (Association of Speech Impaired) – Pentre Farm, Pentre, Bucknell, Shropshire, SY7 0BU. Tel 01547 520 332/Fax 520 728. Support and advice. THE FLUENCY TRUST – D G White, The Old Farm House, Berwick Bassett, Swindon, Wiltshire. 01793 731 226. TOBY CHURCHILL LTD – 20 Panton Street, Cambridge, CB2 1HP. Tel 01223 576 117/Fax 01223 576 118. Manufactures, distributes and repairs lightwriters and electronic communication aids. · SPINA BIFIDA ASBAH – Association for Spina Bifida and Hydro-cephalus – 42 Park Road, Peterborough, PE1 2UQ. Tel 01733 555 988. Support, information and advice. Nationwide network of advisers and specialist advisers. www.asbah.org postmaster@asbah.org · SPINAL CURVATURE see under Scoliosis · SPINAL INJURIES ASPIRE – Royal National Orthopaedic Hospital, Brockley Hill, Stanmore, Middlesex, HA7 4LP. Tel 020 8954 5759/Fax 020 8420 6352. To help people paralysed by spinal injury to rebuild their futures, create opportunity, choice and independence. BACK-UP – The Business Village, Broomhill Road, London, SW18 4JQ. Tel 020 8875 1805. National charity facilitating confidence, independence and rehabilitation of those paralysed through spinal-cord injury by offering challenging outdoor activities. SPINAL INJURIES ASSOCIATION – 76 St Jame's Lane, London, N10 3DF. Tel 020 8444 2121/Fax 020 8444 3761. Information Service, Publications, Personal Assistance Service, Holidays, Counselling Line 020 8883 4296. · SPINAL MUSCULAR ATROPHY JENNIFER TRUST FOR SPINAL MUSCULAR ATROPHY – Elta House, Birmingham Rd, Stratford-on-Avon, CV37 0AQ. Tel 01789 267 520/Fax 268 371. Advice, local contacts. www.jtsma.demon.co.uk · SPINOCEREBELLAR DEGENERATION see under Ataxia · SPONDYLO-EPIPHYSEAL DYSPLASIA TARDA contact Perthes Association, also Restricted Growth Association under Growth BRITISH STAMMERING ASSOCIATION (THE) – 15 Old Ford Road, London, E2 9PJ. Tel 020 8983 1003/Fax 020 8983 3591. Local groups, newsletter, information, Helping Stammering Pupils Project (for schools), Helpline 0845 603 2001. Large sae please. MICHAEL PALIN CENTRE FOR STAMMERING CHILDREN – Finsbury Health Centre, Pine Street, London, EC1R 0lp. Tel 020 7530 4238/Fax 7833 3842. Assessment and advice for stammering children and their families from all parts of the UK. · STEROIDS GASP (Group Against Steroid Prescriptions) – 72 Costa Street, South Bank, Middlesbrough, TS6 6EU. Helpline (2pm-4pm Mon-Thurs)/Fax 01642 465 118. Help and advice for those suffering adverse effects from the prescription of cortico-steroid medication. JAMES KEVILL TRUST – 138 Montrose Avenue, Welling, DA16 2QY. Tel 020 8319 8103. Inform-ation on steroid abuse for families, friends of users. STEROID ACTION GROUP – PO Box 220, London, E17 3JR. Self help group for patients. Campaigns for more information for and from doctors, and for more awareness of side effects. A5 sae for information. · STEPFAMILIES Parentline Plus under Parents · STICKLER SYNDROME STICKLER SYNDROME SUPPORT GROUP – Mrs Wendy Hughes, PO Box 371, Walton on Thames, KT12 2YS. Tel/Fax 01932 267 635. Information and support for affected families, carers and professionals. Books, booklets, newsletter. www.stickler.org.uk · STILLBIRTH see also Tommy’s Campaign under Pregnancy Advice SANDS (Stillbirth and Neonatal Death Society) - 28 Portland Place, London, W1N 4DE. Tel 020 7436 7940. Helpline 020 7436 5881. Provides support, information and local group contacts. · STOMA see also Coloplast under Incontinence BRITISH COLOSTOMY ASSOCIATION – 15 Station Road, Reading, RG1 1LG. Helpline 0800 328 4257/Fax 0118 956 9095. Offers reassurance and advice to anyone who has or is about to undergo a colostomy. www.bcass.org.uk sue@bcass.org.uk ia (ILEOSTOMY & INTERNAL POUCH SUPPORT GROUP – PO Box 132, Scunthorpe, Lincs, DN15 9YW. Tel 01742 720 150/Fax 01742 721 601. Local groups. Research. www.ileostomypouch.demon.co.uk NASPCS – 51 Anderson Drive, Valley View Park, Darvel, KA17 0DE. Tel 01560 322 024. For parents of children with Imperforate Anus, Hirschprungs Disease, Cloacal Exstrophy, Exstrophy of the Bladder, Prune Belly Syndrome. Newsletter, contacts. UROSTOMY ASSOCIATION – Angela Cooke, Buckland, Beaumont Park, Danbury, CM3 4DE. Tel 01245 224 294/Fax 227 569. For those about to undergo, or who have undergone surgery resulting in the diversion or removal of the bladder. Information, help and advice. ua@centraloffice.fsnet.co.uk · STRESS see
also under Phobias STRESS, ANXIETY & DEPRESSION HELPLINE – Steve Jackson, PO Box 183, Aylesford, Kent, ME20 7DY. Confidential helpline on 01622 717 656. Stresshelp@btinternet.com “UNWIND” PAIN AND STRESS MANAGEMENT – Marie Langley, Melrose, 3 Alderlea Cl, Gilesgate, Durham, DH1 1DS. Tel/Fax 0191 384 2056. Support for sufferers of stress/pain. Self help programmes, books, tapes and helpline backup. Sae for details. · STROKE DIFFERENT STROKES – 162 High Street, Watford, WD1 2EG. Tel 01923 240 615/Fax 01923 240 624. Information and support for younger stroke survivors. www.differentstrokes.co.uk info@differentstrokes.co.uk THE STROKE ASSOCIATION – Stroke House, Whitecross Street, London, EC1Y 8JJ. Tel 020 7566 0300/Fax 020 7490 2686. Local information centres. Family support, research, extensive information. · STRUMPELL-LORRAINE SYNDROME see under Familial Spastic Paraplegia · STURGE WEBER SYNDROME STURGE WEBER FOUNDATION – Jenny Denham, 348 Pinhoe Road, Exeter, EX4 8AF. Tel 01392 464 675. Help, support and information. Newsletter and annual Family Weekend addressed by professionals. www.sturgeweber.org.uk support@sturgeweber.org.uk · SUDANOPHILIC LEUKODYSTROPHY see under Adrenoleukodystrophy · SUDDEN INFANT DEATH SYNDROME see under Cot Death · SUICIDE see The Samaritans under Samaritans.
Also Shadow of Suicide c/o Compassionate
Friends for those affected by the suicide of a loved one · SUPRA-BULBAR PALSY contact Worster Drought Syndrome Contact Group · SYSTEMIC LUPUS ERYTHMATOUS see under Lupus, also Arthritis Care and Raynaud’s & Scleroderma Association · SYRINGOMYELIA ANTS – Syringomyelia Clinic, Neuroscience Centre, Queen Elizabeth Hospital, Edgbaston, Birmingham, B15 2TH. Tel 0121 697 8254 (9.30am-4.30pm). · SYSTEMIC SCLEROSIS contact Raynaud’s and Scleroderma Association |
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