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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Information supplied by g-text.
Buy the print version of the catalogue for only £10 from this
address: · PACHYGYRIA contact Lissencephaly Contact Group · PAGET'S DISEASE NARPD – 323 Manchester Road, Walkden, Worsley, Manchester, M28 3HH. Tel 0161 799 4646/Fax 799 6511. Funds medical research. Offers information, support and advice. director@paget.org.uk · PAIN see also under Stress PAIN SOCIETY (THE) – 9 Bedford Square, London, WC1B 3RE. Tel 020 7636 2750/Fax 020 7323 2015. General information on chronic pain/details of pain clinics in UK. www.staff.ncl.ac.uk/r.j.hayes/painsoc.html PAIN WISE UK – Rosalie Everatt, 33 Kingsdown Park, Tankerton, Kent, CT5 2DT. Tel/Fax 01227 277 993. Group support and counselling for people with chronic pain. Relaxation/stress reduction strategies. · PALLID SYNCOPE contact Stars under Reflex Anoxic Seizures · PANCREATITIS THE PANCREATITIS SUPPORTERS NETWORK – J A Armour, PO Box 8938, Birmingham, B13 9FW. Tel/Fax 0121 449 0667. Information and advice for patients, families and friends. www.pancreatitis.org.uk · PANHYPOPITUITARISM contact GHD Support Group c/o CGF under Growth · PANIC ATTACKS see under Phobias · PARENTS see also under Family and under Single Parents ACCEPTANCE – 64 Holmside Avenue, Halfway Houses, Sheerness, Kent, ME12 3EY. Tel/Fax 01795 661 463. Helpline and support for parents of lesbians and gay men. jillandgordon@acceptance.fsnet.co.uk BOTH PARENTS FOREVER – 39 Cloonmore Av, Orpington, Kent, BR6 9LE. Tel 01689 854 543. Advice to parents, grandparents, extended family and children on their rights following divorce, separation. Help in child abduction cases and overseas access. BRITISH FALSE MEMORY SOCIETY – Roger Scotford, Bradford-on-Avon, BA15 1NF. Tel 01225 868 682. Support group for falsely accused parents. Offers information, advice and support. CHILDCARE LINK – Details of local information on childcare options funded by the Dept for Education. Freephone 08000 960 296. www.childcarelink.gov.uk/ PARENTLINE PLUS – Unit 520, Highgate Studios, 53-57 Highgate Road, London, NW5 1TL. Tel 020 7284 5500/Helpline 0808 2222. Information/support for all families/stepfamilies. www.parentlineplus.org.uk PARENTS’ FRIEND – Joy Dickens, c/o Voluntary Action Leeds, Stringer House, 34 Lupton Street, Hunslet, Leeds, LS10 1QW. Tel 0113 267 4627/Fax 2949 677. National helpline for parents of lesbians, gays and bi-sexuals. www.parentsfriend.demon.co.uk PARENT NETWORK – Wendy Whitehead, 9 The Lodge, 3 Blackwater Road, Eastbourne, BN21 4JF. Tel 01323 638 234. Support for parents of gays. REUNITE (NATIONAL COUNCIL FOR ABDUCT-ED CHILDREN – PO Box 4, London WC1X 3DX. Tel 020 7404 8356/Fax 020 7242 1512. Advice and information for parents. reunited@dircon.co.uk · PARKINSON'S DISEASE PARKINSON'S DISEASE SOCIETY – 215 Vauxhall Bridge Road, London, SW1V 1EJ. Tel 020 7931 8080 Local branches provide help, advice, friendship and support. National helpline on 0808 800 0303. · PATAU SYNDOME see SOFT under Trisomy · PELIZAEUS-MERZBACHER PELIZAEUS-MERZBACHER SUPPORT GROUP – Mrs C Wood, 95 Batemill Road, Birchvale, High Peak, Derbyshire, SK22 1BB. Tel 01663 747 001. · PEARSON MARROW SYNDROME contact The Children’s Mitochondrial Disease Network under Mitochondrial · PELVIC DYSFUNCTION (THROUGH PREGNANCY) see under DSP · PELVIC INFLAMMATORY DISEASE PID SELF HELP REFERRAL NETWORK – c/o Women’s Health, 52 Featherstone Street, London, EC1Y 8RT. Helpline 020 7251 6580/Fax 020 250 4152. womenshealth@pop3.poptel.org.uk · PEMPHIGUS VULGARIS PEMPHIGUS VULGARIS NETWORK – Flat C, 26 St Germans Road, London, SE23 1RJ. Please send sae for reply. www.pemphigus.org · PENPALS WRITE AWAY – 1 Thorpe Cl, London, W10 5XL. Tel 020 8964 4225/Fax 8964 3532. Penfriend scheme for adults/children with disabilities or special needs · PERCEPTUOMOTOR DYSFUNCTION contact Dyspraxia Foundation · PERIOD PAIN see Premenstrual Society under Premenstrual Syndrome · PERIPHERAL NEUROPOATHY NEUROPATHY TRUST (THE) – PO Box 26, Nantwich, CW5 5FP. www.neuropathy–trust.org/ · PERONEAL MUSCULAR ATROPHY see under Hereditary Motor & Sensory Neuropathy · PERSONAL RELATIONSHIP PROBLEMS BRITISH ASSOCIATION FOR SEXUAL AND RELATIONSHIP THERAPY – PO Box 13686, London, SW20 9ZH. Send sae for list of local therapists. RELATE (NATIONAL MARRIAGE GUIDANCE) – Herbert Gray College, Little Church Street, Rugby, CV21 3AP. Tel 01788 573 241/Fax 01788 535 007. Aims to support marriage and family life, co-ordinates 121 local centres. www.relate.org.uk · PERTHES DISEASE PARENTS OF PERTHES SUPPORT GROUP – Sheila Trever, 6 Ash Close, Sproatley, Hull, HU11 4XE. Tel 01482 814 721 (to 7pm). Help and advice. Info pack - small donation. www.audi44.freeserve.co.uk sheila@audi44.freeserve.co.uk PERTHES ASSOCIATION – 15 Recreation Road, Guildford, GU1 1HE. Tel 01483 306 637/Fax 01483 503 213. www.perthes.org.uk help@perthes.org.uk · PESTICIDE EXPOSURE PEX (Action on Pesticide Exposure) – Eurolink Centre, 49 Effra Road, London, SW2 1BZ. Tel 020 7274 8895/ Fax 020 7274 9084. Information about pesticides. Advice and support for those whose health has been affected. www.pan-uk.org · PFEIFFER SYNDROME see under Craniofacial · PHENYLKETONURIA see under Metabolic Disorders · PHOBIAS DENTAL ANXIETY AND PHOBIA ASSOCIAT-ION – 43 Harley Street, London, W1G 9RP. Tel 020 7580 0011. www.healthyteeth.com FIRST STEPS TO FREEDOM – Sheila Harris, 7 Avon Court, School Lane, Kenilworth, CV8 2GX. Tel 01926 851 608. Anxiety/panic attacks, phobias, obsessive disorders. www.firststeps.demon.co.uk e-mail firststepstofreedom@compuserve.com NATIONAL PHOBICS SOCIETY – Zion CRC, 339 Stretford Road, Hulme, Manchester, M15 4EY. Tel 0161 227 9898/Fax 227 9862. Advice/information for anxiety, panic attacks and obsessive/compulsive disorders. http://www.phobics -society.org.uk NO PANIC – 93 Brands Farm Way, Randlay, Telford, TF3 2JQ. Tel 01952 590 545. Advice on phobias, panic attacks and obsessive compulsive disorders. PAX – Alice Neville, 4 Manorbrook, Blackheath, London, SE3 9AW. Tel 020 8318 5026. Advice on panic attacks, phobias and anxiety disorders. Sae. STEPPING OUT – Wendy Cardy, 48 South Street, Colchester, CO2 7BJ. Tel 01206 766 232/Fax 577 404. For agoraphobic people. TASS – c/o 67 Brassey Road, London, NW6 2DB. Tel 020 7813 4696. Advice and support for agoraphobics. TRIUMPH OVER PHOBIA (TOP UK) – PO Box 1831, Bath, Avon, BA2 4YW. Tel 01225 330 353. Nationwide network of self-help groups for phobias and compulsive disorders. WHY ME? – 6 Thorney Close, Fareham, Hampshire, PO14 3AF. Tel 01329 312 997. Guidance on acute anxiety disorder, agoraphobia and panic attacks. · PICK’S DISEASE PICK’S DISEASE SUPPORT GROUP – Carol Jennings, 8 Brooksby Close, Oadby, Leicester, LE2 5AB. Tel 0116 2711 414/Fax 0870 706 0958 carol@pdsg.org.uk · PIERRE-ROBIN PIERRE-ROBIN CONTACT GROUP – Ms J Mitchell, 83 Swallowfield Road, London, SE7 7NT Tel 020 8853 1811. Information/Contact. · PITUITARY DISORDERS for pituitary hormone deficiency contact GHD Support under Growth PITUITARY FOUNDATION – Ann Bailey, PO Box 1944, Bristol, BS99 2UB. Tel/Fax 0117 927 3355. Rare pituitary disorders including Cushing disease, diabetes insipidus, prolactinoma, acromegaly. www.pituitary.org.uk helpline@pitpat.demon.co.uk · POLAND SYNDROME contact reach under Disability · POLIO BRITISH POLIO FELLOWSHIP – Eagle Office Centre, The Runway, South Ruislip, Middlesex, HA4 6SE. Freephone 0800 0180586/Fax 020 8842 0555. Local branches/officers. Holidays and welfare. Information, Financial help. info@britishpolio.org · POLYARTERITIS POLYARTERITIS (VASCULITIS) CONTACT – 15 Chepstow Grove, Rednal, Birmingham, B45 8EG. Tel 0121 453 3349. National contact list. · POLYARTERITIS NODOSA see under Stuart Strange Trust under Wegener’s Granulomatosis, also Arthritis Care · POLYCYSTIC KIDNEY DISEASE contact Kidney Patient Association · POLYCISTIC OVARY SYNDROME VERITY – Tindle Manor, 52-54 Featherstone Street, London, EC1Y 8RT. Large sae please. · POLYDACTYLY SYNDROME see under Laurence-Moon-Bardet-Beidl Syndrome · POLYMICROGYRIA contact Lissencephaly Support Group · POLYMYOSITIS contact Dermatomyositis & Polymyositis Support Group under Dermatomyositis · POLYNEUROPATHY contact GBS Support Group under Guillain-Barre Syndrome · POLYOSTOTIC FIBROUS DYSPLASIA contact Ollier Disease Self-Help Group · POMPE DISEASE contact Association for GSD under Glycogen Storage Diseases · PORENCEPHALY PORENCEPHALY CONTACT GROUP – 10 Cherry-tree Road, Seaview, Isle of Wight, PO34 5JF. Tel 01983 612262. l.s.w@btinternet.com · PORPHYRIA also contact RTMDC under Metabolic Diseases PORPHYRIA CHARITABLE TRUST – David Wharrie & Co, Woodside House, Ashton, Chester, CH3 8AE. Tel 01829 751 544. Funds medical research and assists sufferers. · POST-AXIAL DYSOSTOSIS contact Nager Syndrome Association · POST-ABORTION TRAUMA see under Pregnancy Advice · POST-NATAL DEPRESSION see under Mothers · POST TRAUMATIC STRESS see under Trauma/Disaster · POST-VIRAL SYNDROME see under Myalgic Encephalomyelitis · POTTERS SYNDROME POTTERS SYNDROME CONTACT GROUP – Mrs S Bonsall, 46 Borfa Green, Welshpool, Powys, SY21 7QF. · PRADER-WILLI SYNDROME PRADER WILLI ASSOCIATION – 33 Leopold St, Derby, DE1 2HF. Tel 01332 365 676/Fax 360 401. Supports parents and carers. Information, advice and handbooks (including information for school staff). · PRECONCEPTUAL FORESIGHT – 28 The Paddock, Godalming, Surrey, GU7 1XD. Tel 01483 427 839/Fax 427668. Preconceptual care, infertility, miscarriage. 33p sae. · PRE-ECLAMPSIA APEC (Action on Pre-Eclampsia) – 31-33 College Road, Harrow, Middlesex, HA1 1EJ. Tel 020 8863 3271/Fax 020 8424 0653. Advice and information for the public and health professionals. Helpline 020 8427 4217. www.apec.org.uk info@apec.org.uk PETS (Pre-Eclampsia Toxaemia Society) – Dawn James, ‘Rhianfa’, Carmel, Caernarvon, LL54 7RL. Tel 01286 882 685 OR Sharon Copping, 18 Southend Road, Hockley, Essex, SS5 4QQ. Tel 01702 205 088. · PREGNANCY ADVICE BRITISH MATERNITY TRUST – 40 Kingswood Avenue, London, NW6 6LS. Tel 020 8960 5585. Information for mothers-to-be, rights and choices. BRITISH PREGNANCY ADVISORY SERVICE – 11-13 Charlotte Street, London, W1P 1HD. Tel 020 7637 8962/Fax 020 7323 4215. Information and advice on abortion matters. Helpline on 0345 304 030. http://www.bpas.demon.co.uk/ LIFE – Life House, 1a Newbold Terrace, Leamington Spa, Warwicks, CV32 4EA. Tel 01926 421 587/Fax 01926 336 497/Helpline 311 511. Pro-life support and advice to anyone with problem pregnancies or suffering after an abortion. Talks to schools. NATIONAL CHILDBIRTH TRUST – Alexandra House, Oldham Terrace, London, W3 6NH. Tel 020 8992 8637/Fax 020 8992 5929. Advice on pregnancy and childbirth. www.nct-online.org ARC (Antenatal Results and Choices) – 73 Charlotte St, London, W1T 4PN. Helpline 020 7631 0285. Tel/Fax 020 7631 0280. For parents undergoing ante-natal testing and parents who have had a diagnosis of abnormality in their unborn baby. TOMMY’S CAMPAIGN – 1 Kennington Road, London, SE1 7RR. Tel 020 7593 1150/Fax 020 7928 6628. Research into premature birth, miscarriage, stillbirth, toxoplasmosis. www.tommys-campaign.org mailbox@tommys-campaign.org WELLBEING – Mrs J Arnell, 27 Sussex Place, Regents Park, London, NW1 4SP. Tel 020 7772 6400. Research into pregnancy, childbirth and premature babies. · PREMATURE BABIES see above · PREMATURE MENOPAUSE/PREMAT-URE OVARIAN FAILURE contact The Daisy Network under Menopause · PREMATURE SEXUAL MATURATION contact PSM Group c/o Child Growth Foundaton under Growth · PREMENSTRUAL SYNDROME NAPS (National Association for Premenstrual Syndrome) – 7 Swift’s Court, High Street, Seal, Sevenoaks, TN15 0EG. Tel/Fax 01732 760 011. Information, booklets (incl. dietary advice), contacts, local groups, educational resources. Helpline 01732 760 012. www.pms.org.uk naps@charity.vfree.com PREMSOC (Premenstrual Society) – Dr M G Brush, PO Box 429, Addlestone, Surrey, KT15 1DZ. Tel 01932 872 560. Information and support for PMS and period pain sufferers. Advice for professionals. PMS HELP – PO Box 83, Hereford, HR4 8YQ. Provides postal information and help to PMS sufferers and their families. Also information on post-natal illness/depression and the menopause. Education to the health profession on PNI/D. Booklets £1 plus sae. WOMEN'S NUTRITIONAL ADVISORY SERVICE – Maryon Stewart, PO Box 268, Lewes, BN7 1QN. Tel 01273 487 366/Fax 01273 487 576. Nutritional information through clinic and helpline consultation for PMS, IBS, Menopause, Osteoporosis, Fatigue. · PRESSURE SORES WOUND CARE SOCIETY – PO Box 170, Hartford, Huntingdon, PE29 1PL. Leg ulcers, pressure sores and all types of wounds. www.wound.care.society.org woundcare.society@btinternet.com · PRIMARY BILIARY CIRRHOSIS see under Liver · PRIMARY CILIARY DYSKINESIA PCD FAMILY SUPPORT GROUP – Mrs Mary O’Donnell, 16 Graham Road, Mitcham, Surrey, CR4 2HA. Tel 020 8646 3770. odonnellfam@btinternet · PRIMARY RED CELL ANAEMIA contact Diamond-Blackfan Anaemia Support Group c/o Contact a Family under Family · PRIMARY SCLEROSING CHOLANGITIS see under Liver · PRISONERS OVERSEAS (British Nationals) PRISONERS ABROAD – 89-93 Fonthill Road, London, N4 3JH. Tel 020 7561 6820/Fax 020 7561 6821. Advice and support to British nationals imprisoned overseas and support to their families. www.prisonersabroad.org.uk info@prisonersabroad.org.uk · PROGRESSIVE SUPRANUCLEAR PALSY PSP ASSOCIATION (THE) – The Old Rectory, Wappenham, Towcester, Northants, NN12 8SQ. Tel 01327 860 299/Fax 01327 861007. www.pspeur.org · PROLACTINOMA contact Pituitary Foundation · PROLONGED EXPIRATORY APNOEA contact Stars under Reflex Anoxic Seizures · PROTEUS SYNDROME contact HME Group under Hemimegalencephaly · PROSTATE see also
Prostate Cancer Charity under Cancer
and under Men’s Health PROSTATE HELP ASSOCIATION – Philip Dunn, Langworth, Lincoln, LN3 5DF. Newsletters, support network, advice. 2 x 1st class stamps for information and details. www.pha.u-net.com philip@pha.u-net.com PROSTATE RESEARCH CAMPAIGN – 36 The Drive, Northwood, Middlesex, HA6 1HP. Advice on benign and malignant prostrate disorders. £8.95 book available. Large sae. www.prostate-research.org.uk · PROTEUS SYNDROME contact HME Contact Group under Hemimegalencephaly · PRUNE-BELLY SYNDROME also NASPCS under Stoma PRUNE-BELLY SYNDROME CONTACT GROUP – Mrs M Dangerfield, 35 Larchmere Drive, Essington, Wolverhampton, WV11 2DG. Tel 01922 494 990. · PSEUDOACHONDROPLASIA contact Restricted Growth Association c/o Child Growth Foundation under Growth · PSEUDOHURLER POLYDYSTROPHY contact Society for Mucopolysaccaride Diseases under Metabolic Diseases · PSEUDOXANTHOMA ELASTICUM PXE SUPPORT GROUP – 15 Mead Close, Marlow, SL7 1HR. Tel 01628 476 687. www.pxe.org.uk pxeeurope@aol.com · PSORIASIS PSORIASIS ASSOCIATION – 7 Milton Street, Northampton, NN2 7JG. Tel 01604 711 129/Fax 01604 792 894. Advice and education. · PSORIATIC ARTHROPATHY PSORIATIC ARTHROPATHY ALLIANCE – PO Box 111, St Albans, AL2 3JQ. Tel/Fax 01923 672 837. www.paalliance.org office@paalliance.org · PULMONARY FIBROSIS see British Lung Foundation under Lung · PURINE METABOLIC DISEASES contact PUMPA under Metabolic Diseases |
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