location: support groups < healthy

Support groups

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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·   LAIGH’S DISEASE/LAIGH’S SYNDOME contact The Children’s Mitochondrial Disease Network under Mitochondrial Disease

·   LANDAU KLEFFNER SYNDROME

FOLKS (Friends of Landau Kleffner Syndrome) – 3 Stone Buildings, Lincoln’s Inn, London, WC2A 3XL.  Helpline 0870 847 0707.  101361.250@compuserve.com

·   LANDOUZY-DEJERINE SYNDROME contact FSH Muscular Dystrophy Support Group under Muscular Dystrophy

·   LANDRY’S SYNDROME contact Guillain-Barre Syndrome Support Group

·   LANGERHAN’S CELL HISTIOCYTOSIS contact Histiocytosis Support Group

·   LARSEN SYNDROME

LARSEN SYNDROME SUPPORT GROUP – Mrs K Scotland, 7 Littleworth Lane, Esher, Surrey, KT10 9PF.  Tel 01372 467 061.

·   LARYNGEAL DYSTONIA see The Dystonia Society under Dystonia

·   LARYNGECTOMY

NATIONAL ASSOCIATION OF LARYNGECTOMY CLUBS – Ground Fl, 6 Rickett Street, London, SW6 1RU.  Tel 020 7381 9993/Fax 020 7381 0025.

· LAURENCE-MOON-BARDET-BIEDL SYNDROME

LMBBS – Drina Parker, Spring Grove, Loudhams Wood Lane, Chalfont St Giles, HP8 4AR.  Tel/Fax 01494 764 924. Supports people with LMBBS, families/carers.  Information for them & professionals. www.lmbbs.org.uk                 drinaparker@lineone.net

·   LEARNING DISABILITIES/LEARNING DIFFICULTIES see under Special Educational Needs

·   LEBER'S OPTIC NEUROPATHY also contact The Children’s Mitochondrial Disease Network under Mitochondrial Disease

LEBER'S OPTIC NEUROPATHY TRUST – 124 Wolds Drive, Keyworth, Notts, NG12 5DA.  Tel 0115 937 5094.  Information, advice and support.

·   LEFT-HANDED

ANYTHING LEFT-HANDED LIMITED – 18 Avenue Road, Belmont, Surrey, SM2 6JD.  Tel 020 8770 3722/Fax 020 8715 1220.  Leading supplier of left-handed products.  www.anythingleft-handed.co.uk

LEFT HANDED COMPANY – PO Box 52, South DO, Manchester, M20 2PJ.  Tel/Fax 0161 445 0159.  Books and products mail order.  Main schools and special needs supplier.  INSET talks and workshops: Helping left-handed children.  Research material.

LEFT HANDED SHOP (THE) – 57 Brewer Street, London, W1R 3FB.  Tel 020 7437 3910 or 020 8770 3722/Fax 020 8715 1220. A large range of left-handed items, particularly useful for children, by mail order.

·   LEGG-CALVE-PERTHES SYNDROME contact Perthes Association

·   LEG ULCERS see under Pressure Sores

·   LEJEUNE SYNDROME contact Cri Du Chat Syndrome Support Group

·   LENNOX-GASTAUT SYNDROME

LENNOX-GASTAUT SUPPORT GROUP – Andrew Gibson, 9 South View, Burrough on the Hill, Melton Mowbray, LE14 2JJ.  Tel 01664 454 305.

·   LEROY DISEASE contact Society for Mucopoly-saccharide Diseases under Metabolic Diseases

·   LESCH-NYHAN SYNDROME contact PUMPA under Metabolic Diseases

·   LETTERER-SIWE DISEASE contact Histiocytosis Support Group

·   LEUKAEMIA

CHILDREN’S LEUKAEMIA SOCIETY – 49 Broad-way, Roath, Cardiff, CF2 1QE.  Tel 029 20452 483.  Supplies holidays and convalescence or any other aid which will help with the recovery of the child.

ELF (Elimination of Leukaemia Fund) – 7 Venetian Road, Denmark Hill, London, SE5 9RR.  Tel 020 7737 4141/Fax 7737 7009.  Advice and information.

LEUKAEMIA CARE SOCIETY (THE) – 2 Shrubbery Avenue, Worcester, WR1 1QH.  Tel 01905 330003.  Careline 0800 169 6680.  Information, support and holidays.

LEUKAEMIA RESEARCH FUND – 43 Great Ormond Street, London, WC1N 3JJ. Tel 020 7405 0101/Fax 020 7242 1488.  Information and advice on leukaemia, lymphoma, myeloma and related blood disorders.  www.lrf.org.uk

·   LEUKODYSTROPHIES contact the RTMDC under Metabolic Diseases

·   LICHEN SCLEROSUS

NATIONAL LICHEN SCLEROSUS SUPPORT – 2 Ivy House, Wantage Road, Great Shefford, Berkshire, RG17 7DA.  www.hiway.co.uk/lichensclerosus

·   LINEAR SCLERODERMA contact Raynaud’s & Scleroderma Association under Raynaud's

·   LINEAR SEBACEOUS NAEVUS SYNDR-OME contact HME Contact Group under Hemimegalencephaly

·   LISSENCEPHALY

LISSENCEPHALY CONTACT GROUP – Nayyer Ahmed, Cedar Wood, Lea Lane, Cookley, Kidderminster, DY10 3RH.  Tel 01562 851 429.

·   LISTENING BOOKS – 12 Lant Street, London, SE1 1QH.  Tel 020 7407 9417/Fax 7403 1377.  Audio books library on ordinary casettes and an unlimited supply of 3000+ talking books.  For those who cannot read in the normal way due to disabilities.  www.listening-books.org.uk    info@listening-books.org.uk

·   LIVER see also under Haemochromatosis

BEN HARDWICK FUND – 12 Nassau Road, Barnes, London, SW13 9QE.  Tel 020 8741 8499.  Helps families of children with primary liver disease with costs incurred as a result of their illness.

BRITISH LIVER TRUST – Central House, Central Av, Ransomes Europark, Ipswich, IP3 9QG.  Tel 01473 276 326/Fax 276 327.  Infoline 0808 800 1000. www.britishlivertrust.org.uk    info@britishlivertrust.org.uk

CHILDREN'S LIVER DISEASE FOUNDATION – 36 Great Charles St, Birmingham, B3 3JY.  Tel 0121 212 3839/Fax 212 4300. www.childliverdisease.org

OBSTETRIC CHOLESTASIS SUPPORT AND INFORMATION SERVICE – Jenny Chambers, 4 Shenstone Close, Four Oaks, Sutton Coldfield, B74 4XB.  Tel 0121 353 0699.  jennychambers0@aol.com

PRIMARY SCLEROSING CHOLANGITIS SUPP-ORT GROUP – Deborah Martin, 23 Clarendon Road, Ashford, Middlesex, TW15 2QJ.  Tel 01784 259 309.  www.psc-support.demon.co.uk

·   LIVER TUMOURS

HALT (Help Against Liver Tumours) – c/o Depart-ment of Surgery, North Manchester General Hospital, Delauneys Road, Crumpsall, Manchester, M8 5RB.  Tel 0161 720 2612.

·   LOIN PAIN

LOIN PAIN & HAEMATURIA SYNDROME – Pauline Wint.  Tel 01543 262 771.  E-mail at pauline@aronagrena.freeserve.co.uk

·   LONELINESS

ARCHWAY FOUNDATION – The New Marston Pastoral Centre, Marston Road, Oxford, OX3 0DL.  Tel 01865 790 552.  Befriending and social support.

ASSOCIATION OF RETIRED AND PERSONS OVER 50 – 4^th Floor, Greencoat House, Francis Street, London, SW1P 1DZ.  Tel 020 7828 0500/Fax 020 7233 7132.  National network of 190 friendship centres.  www.arp.org.uk  info@arp.org.uk

CONTACT THE ELDERLY – Monica Hartwell, 15 Henrietta Street, London, WC2E 8QH.  Tel 020 7240 0630/Fax 020 7379 5781.  Informal groups of up to 12 lonely older people and 6 volunteers meeting for regular monthly Sunday afternoon outings.

SINGLE CONCERN GROUP – David Taylor, PO Box 40, Minehead, TA24 5YS.  Tel 01643 708 008.  For lonely and socially isolated people.  Magazines, help service, phone link.  Specialist volunteers.

·   LONG QT SYNDROME

LONG QT FAMILY SUPPORT GROUP – Suzanne Brittin, 7 Strand Close, Maidenbower, Crawley, West Sussex, RH10 7HB.  Tel 01293 888 016.  Support, advice and contact.  Lqts_family_supp@hotmail.com

·   LOWE SYNDROME

LOWE SYNDROME ASSOCIATION – Julie & David Oliver, 29 Gleneagles Drive, Penwortham, Preston, Lancashire, PR1 0JT.  Tel 01772 745 070.

·   LOWER LIMB ABNORMALITIES

STEPS – Lymm Court, 11 Eagle Brow, Lymm, Cheshire, WA13 0LP.  Tel 01925 757 525/Fax 757 797.  Contact, local group support and information and advice service.  Info@steps-charity.org.uk

·   LOW FREQUENCY NOISE

LFNA (Low Frequency Noise Sufferers Association) – Jan Bungay, Kenwyn Cottage, Buckland Brewer, Bideford, EX39 5LU.  To create greater awareness of LFN.  To work towards changing legislation.

·   LUFT DISEASE contact The Children’s Mitochondrial Disease Network under Mitochondrial Disease

·   LUNG

BRITISH LUNG FOUNDATION – 78 Hatton Gdn, London, EC1N 8LD.  Tel 020 7831 5831/Fax  7831 5832.  www.lunguk.org    blf@britishlungfoundation.com

SARCOIDOSIS ASSOCIATION – Anita & Sydney Cooke, 19 Ashurst Close, Blackbrook, St Helens, WA11 9DN.  Tel 01744 28020.

SILA (Sarcoidosis & Interstitial Lung Association) – Heather Walker, c/o Chest Clinic Office, Victoria and Albert Ward, Kings College Hospital, London, SE5 9RS.  Tel (home) 020 020 7237 5912.  Support for sufferers and their carers.  Raising funds for research.

·   LUPUS 

LUPUS UK – Brian Hanner, St James House, Eastern Rd, Romford, Essex, RM1 3NH.  Tel 01708 731 251/Fax 01708 731 252.  Contact and information.

·   LYMPHANGIOMA see under Cystic Hygroma

·   LYMPHOEDEMA

LYMPHOEDEMA SUPPORT NETWORK – St Luke’s Crypt, Sydney Street, London, SW3 6NH.  Tel 020 7351 4480/Fax 7349 9809.  www.lymphoedema.org    adminlsn@lymphoedema.freeserve.co.uk

·   LYMPHOMA

LYMPHOMA ASSOCIATION – PO Box 386, Aylesbury, HP20 2GA.  Tel 01296 619 400/Fax 01926 619 414. Helpline 0808 808 5555.  Specialist advice and information, local groups.  Booklets, leaflets, videos and newsletter.  www.lymphoma.org.uk

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