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Support groups

 
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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Information supplied by g-text. Buy the print version of the catalogue for only £10 from this address:
 FREEPOST NWW6775, BLACKPOOL. FY4 3GA.

·   I-CELL DISEASE contact Society for Mucopolysaccharide Diseases under Metabolic Diseases

·   ICHTHYOSIS/LAMELLA/COLLODION

ICHTHYOSIS SUPPORT GROUP – Pamela Catlyn, 16 Cambridge Ct, Cambridge Av, Kilburn, London, NW6 5AB.  Tel 020 7461 01356/Fax 020 7461 0356.

·   IDIOPATHIC THROMBOCYTOPENIA PURPURA

ITP SUPPORT ASSOCIATION – Mrs S Watson, Synehurst, Kimbolton Road, Bolnhurst, Bedfordshire, MK44 2EW.  Tel/Fax 01234 376 559.  Support, information, patient/parent telephone network.

·   IDIOPATHIC ERYTHROBLASTOPENIA contact Diamond-Blackfan Anaemia Support Group c/o Contact a Family under Family

·   ILEOSTOMY see under Stoma

·   ILIZAROV AND EXTERNAL FIXATORS

ILIZAROV & EXTERNAL FIXATOR WEARERS SUPPORT GROUP – Dale Haines, 21a Victoria Gardens, Biggin Hill, Westerham, Kent, TN16 3DH.  Tel 01959 576754/Fax 574220.  info@ilizarov.org.uk   www.ilizarov.org.uk

·   IMMOTILE CILIA SYNDROME see under Primary Ciliary Dyskinesia

·   IMMUNE DEFICIENCY SYNDROMES

PRIMARY IMMUNODEFICIENCY ASSOCIATION – David Watters, Alliance House, 12 Caxton St, London, SW1H 0QS.  Tel 020 7976 7640/Fax 020 7976 7641.  For patients and families of anyone suffering from any of the primary immune deficiencies.  www.pia.org.uk   pimmune@dial.pipex.com

·   IMMUNISATION see under Vaccination To diseases and conditions

·   IMPERFORATE ANUS see under Stoma

·   IMPOTENCE see also under Men’s Health

IMPOTENCE ASSOCIATION – PO Box 10296, London, SW17 9WH.  Tel 020 8767 7791.  Advice, information and mutual support for sufferers.

·   INCONTINENCE for male genito-urinary problems see under Men’s Health

ASSOCIATION FOR CONTINENCE ADVICE – 102a Astra House, Arklow Road, New Cross, London, SE14 6EB.  Organisation for health and social care professionals with a special interest in continence.  www.aca.uk.com    info@aca.uk.com

COLOPLAST LTD – Peterborough Business Park, Peterborough, Cambridgeshire, PE2 6FX.  Tel 01733 392 000/Fax 233 348/Helpline 0800 220 622.  Free advice for people with stomas or continence problems.

CONTINENCE FOUNDATION – 307 Hatton Sq, 16 Baldwin Gardens, London, EC1N 7RJ.  Tel 020 7404 6875.  Helpline 0191 213 0050.  Publications and research.  Umbrella body for continence groups.

INCONTACT – United House, North Road, London, N7 9DP.  Tel 020 7700 7035.  Information & support for people with problems & their carers.  Free booklet and magazine.  www.incontact.org      edu@incontact.org

·   INCONTINENTIA PIGMENTOSIA contact Ectodermal Dysplasia Support Group

·   INCONTINENTIA PIGMENTOSUM ACH-ROMIANS contact Hypomelanosis of ITO Support Group

·   INDIGESTION see DDF under Digestive Disorders

·   INDUSTRIAL DISEASES

OCCUPATIONAL AND ENVIRONMENTAL DIS-EASES ASSOCIATION – Nancy Tait, MBE, PO Box 26, Enfield, EN1 2NT.  Tel 020 8360 8490.  Aims to help those suffering from/working to identify and prevent industrial diseases.

·   INFANTILE HYPERCALCAEMIA (WILLIAMS SYNDROME)

WILLIAMS SYNDROME FOUNDATION LTD – 161 High Street, Tonbridge, Kent, TN6 1BX.  Tel 01732 365 152/Fax 360 178  Information, contact, acquiring information, assisting and funding research.  Nelsonofwsfintonbridge@compuserve

·   INFERTILITY see also under Preconceptual

CHILD – Charter House, 43 St Leonards Road, Bexhill-on-Sea, TN40 1JA. Tel 01424 732 361/Fax 01424 731 858.  Information and advice, support, newsletter.  www.child.org.uk    office@child.org.uk

DONOR INSEMINATION NETWORK – PO Box 265, Sheffield, S3 7YX.  Tel 020 8245 4369.  Network of parents with children conceived with DI or IVF or those contemplating/undergoing treatment.

ISSUE (The National Fertility Association) – Glenis Ratcliffe, 114 Lichfield Street, Walsall, West Midlands, WS1 1SZ.  Tel 01922 722 888/Fax 01922 640 070.  Help, support, information and counselling.  webmaster@issue.co.uk   www.issue.co.uk

NATIONAL INFERTILITY AWARENESS CAMP-AIGN – PO Box 2106, London, SE1 7FB.  Tel 020 7815 3993/Fax 020 7815 3999.

·   INFLUENZA

CONSUMER HEALTH INFORMATION – PO Box 16382, London, WC1A 2QB.  Tel 020 7404 7842.  Information on colds, flu, pain relief.  www.chic.org.uk

·   INQUEST PROBLEMS

INQUEST – Alexandra National House, 330 Seven Sisters Road, London, N4 2PJ.  Tel 020 8802 7430/Fax 020 8802 7450.  Supporting those trying to obtain justice through the coroner's inquest system.  www.inquest.org.uk    inquest@inquest.org.uk

·   INSOMNIA see under Sleeping To diseases and conditions

·   INSULIN DEPENDENT DIABETES see under Diabetes

·   INTESTINAL DISORDERS see under Stoma

·   INTESTINAL NEURANAL DYSPLASIA contact NASPCS under Stoma

·   INTRAVENOUS

Half PINNT – Riverside Lodge, London Road, Whitehouses, Retford, Nottinghamshire, DN22 7JG.  Tel/Fax 01777 710 723.  Support for children who feed intravenously.  Equipment bank, booklets.

PINNT – PO Box 3126, Christchurch, Dorset, BH23 2XS. Tel/Fax 01202 481 625.  Brings together healthcare professionals and patients receiving Intravenous and Naso-gastric Nutrition Therapy.

·   INTERSTITIAL CYSTITIS see under Cystitis

·   IRRITABLE BOWEL SYNDROME see also Women’s Nutritional Advisory Service under Premenstrual Syndrome; DDF under Digestive Disorders

IBS NETWORK – Northern General Hospital, Sheffield, S5 7AU.  Tel 0114 2611 531/Helpline 01543 492 192.  Self-help group for people with IBS.  For details please send a large sae and a £1 coin.  www.ibsnetwork.org    p.j.nunn@sheffield.ac.uk

ASSOCIATION OF COLON HYDROTHERAP-ISTS– 16 Drummond Ride, Tring, HP23 5DE.  Uses warm water to relieve colon problems including IBS.  www.colonic-association.com

·   ITO SYNDROME see under Hypomelanosis of ITO Syndrome

·   IVEMARK SYNDROME

IVEMARK SYNDROME SUPPORT GROUP – Ingrid Gladki, 71 Milton Road, Taunton, TA1 2JQ.  Tel 01823 257430.  ingi@ingrid-gladki.freeserve.co.uk

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