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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Information supplied by g-text.
Buy the print version of the catalogue for only £10 from this
address: · HAEMANGIOMA see under Cystic Hygroma · HAEMATURIA see under Loin Pain · HAEMOCHROMATOSIS HAEMOCHROMATOSIS SOCIETY – Janet Fernau, Hollybush House, Hadley Green, Barnet, EN5 5PR. Tel/Fax 020 8449 1363. For those people affected by genetic iron overload and professionals. Sae. E-Mail ghsoc@compuserve.com www.trackint.com/ghsoc · HAEMOPHILIA HAEMOPHILIA SOCIETY (THE) – Tom Bradley, Chesterfield House, 385 Euston Road, London, NW1 3AU. Tel 020 7380 0600. Sae for information. info@haemophilia.org.uk · HAIRLESS PSEUDOFEMALE SYNDR-OME contact Androgen Insensitivity Support Group · HAIR LOSS ACTION AGAINST ALOPECIA – Andrea Satchell, 7 West Terrace, Eastbourne, BN21 4QX. Tel 01323 645 164. www.evcaderm.com HAIRLINE INTERNATIONAL/ALOPECIA PAT-IENTS ASSOCIATION – Elizabeth Steel, Lyons Court, 1668 High Street, Knowle, Nr Solihull, B93 0LY. Tel 01564 775 281. Advice for those who have lost or who are losing their hair. Please send sae. · HEAD INJURIES CHILD HEAD INJURY TRUST – Radcliffe Infirm-ary, Woodstock Road, Oxford, OX2 6HE. Tel/Fax 01865 552 467. Local family support groups. Large information database. enquiries@chit.demon.co.uk HEADWAY BRAIN INJURY ASSOCIATION – 4 King Edward Ct, King Edward St, Nottingham, NG1 1EW. Tel 0115 924 0800/Fax 958 4446. Advice, support, respite care. Campaigns to reduce number of head injuries. headway-national@demon.co.uk · HEAD LICE COMMUNITY HYGIENE CONCERN – 160 Inderwick Road, London, N8 9JT. Tel 020 8341 7167/Fax 8292 7208. Advice on head lice and other common parasites, scabies and toxocariasis. Bug buster kit (head lice) for families. Educational materials for schools and health professionals. · HEART see
also Down’s Heart Group under Down’s Syndrome ACHD – (Association for Children with Heart Disord-ers) – [England & Wales] – Gill Hitchen, 26 Elizabeth Drive, Helmshore, Rossendale, BB4 4JB. Tel 01706 213 632. [Scotland] - Sandra Parkins, Killieard Houses, Killiecrankie, Pitlochry, PH16 5LN. Tel 01796 473 204. Friendly support organisation for families and young people with a heart condition. Raising funds for improved facilities. BRITISH CARDIAC PATIENTS ASSOCIATION – Heart Information Centre, 100 Anerley Road, London, SE19 2AN. Tel 020 8289 5591/Fax 020 8289 5592. www.bcpa.co.uk bcpa@easynet.co.uk BRITISH HEART FOUNDATION – 14 Fitzhardinge Street, London, W1H 4DH. Tel 020 7935 0185/Fax 020 7486 1273. Assists setting up local groups, funds nursing care and rehabilitation, publications, videos, advice, educational materials and funds heart research. CARDIOMYOPATHY ASSOCIATION – Carolyn Biro, 40 The Metro Centre, Tolpits Lane, Watford, WD18 9SB. Tel 01923 249 977/Fax 249 987. For sufferers/families of cardiomyopathy (hypertrophic, dilated, restrictive, arrhythmogenic right ventricular). CHILDREN’S HEART FEDERATION – 52 Kennington Oval, London, SE11 5SW. Helpline 0808 808 5000. Support and information to families of children with heart disorders and ongoing contact. CORONARY PREVENTION GROUP – 42 Store Street, London, WC1E 7DB. Tel 020 7580 1070/Fax 020 7436 6220. http://www.healthnet.org.uk EVELINA CHILDREN’S HEART ORGANISAT-ION – Sarah Willoughby, Silver Hill, Pett Road, Pett Village, E Sussex. Tel 01424 813 785. Parents mutual support. CSPURLING@compuserve.com FAMILY HEART ASSOCIATION – 7 North Road, Maidenhead, SL6 1PE. Tel 01628 628 638/Fax 01628 628 698. Support and information for those at risk from premature coronary heart disease, esp. inherited. www.familyheart.org fh@familyheart.org HEART LINE ASSOCIATION – 26 Park Street, Camberley, GU15 3PL. Tel 01766 675 655/Fax 01766 676 979. Help and support to children with heart disorders, their families regardless of severity. HEART LINK – Freepost SWB42, Bristol, BS16 4BR. Tel 0500 676 670 (24 hour). Information, advice and support to heart patients of all ages on all aspects of coronary heart complaints. · HENOCH-SCHONLEIN PURPURA see Stuart Strange Trust under Wegener’s Granulomatosis · HEMIFACIAL MICROSOMIA contact Goldenhar Syndrome Contact Group · HEMIHYPERTROPHY contact Beckwith-Weidmann Syndrome Support Group · HEMIMEGALENCEPHALY HME CONTACT GROUP – 3 Linn Drive, Netherlee, Glasgow, G44 3PT. Tel 0141 633 2617. www.cv.quik.com.au hmecontactgroup@tinyworld.co.uk · HEMIPLEGIA HEMI-HELP – Hilary Latham, 166 Boundaries Road, London, SW12 8HG. Tel 020 8672 3179. Contact, support and information. · HEPATITIS B and C see British Liver Trust under Liver · HEPATITIS (VIRAL) see British Liver Trust under
Liver · HEREDITARY MOTOR AND SENSORY NEUROPATHIES see also under Muscular Dystrophy CMT International UK – Mrs Margaret Read, 121 Lavernock Road, Penarth, South Wales, CF64 3QG. Tel 029 20709 537 · HEREDITARY PROGRESSIVE ARTHRO-OPTHALMOPATHY see under Stickler Syndrome · HEREDITARY SPASTIC PARAPARESIS see under Familial Spastic Paraplegia · HERNIA BRITISH HERNIA CENTRE (THE) – 87 Watford Way, Hendon Central, London, NW4 4RS. Tel 020 8201 7000. · HERPES SIMPLEX SPHERE (Herpes Virus Association) – Marian Nich-olson, 41 North Rd, London, N7 9DP. Helpline 020 7609 9061. Newsletter, leaflets, guides. Sae please. · HIDRADENITIS SUPPURATIVA HIDRADENITIS SUPPURATIVA SUPPORT GROUP – 207 Fernhill Rd, Bootle, Merseyside, L20 0AG. www.hssg.org.uk hssupport@blueyonder.co.uk · HIRSCHSPRUNG’S see under Gut Motility Disorders · HISTIOCYTOSIS HISTIOCYTOSIS SUPPORT GROUP – Fiona Lynch, 23 Maple Grove, Woburn Sands, MK17 8QN. Tel 01908 584 163. · HIV and AIDS AVERT - Aids Education and Research Trust – 4 Brighton Road, Horsham, West Sussex, RH13 5BA. Tel 01403 210 202/Fax 01403 211 001. Funding medical research and AIDS education. www.avert.org info@avert.org BLACKLINERS – Eurolink Business Centre, 49 Effra Road, London, SW2 1BZ. Tel 020 7738 7468/Fax 7738 7945. Support for black people of Asian, African, Caribbean origins with HIV or AIDS. www.blackliners.org info@blackliners.org BARNARDO’S POSITIVE OPTIONS – William Morris Hall, 6 Somers Road, Walthamstow, London, E17 6RX. Tel 020 8520 6625/Fax 020 8520 3307. For children affected by HIV/life theatening illnesses. BODY POSITIVE – Robert Fieldhouse, 14 Greek Street, Soho, London, W1V 5LE. Tel 020 7287 8015/Fax 020 7287 8020/Helpline 0800 616 200. Information centre, therapies, newsletter and support. E-Mail bp@bodypositive.demon.co.uk CARA – 178 Lancaster Road, London, W11 1QU. Tel 020 7792 8299/Fax 020 7792 8004. Pastoral care for people affected by HIV. EILEEN TRUST (THE) – PO Box 627, London, SW1H 0QG. Tel 020 7799 3184/Fax 020 7233 0839. Offers support to people (other than haemophiliacs) infected with HIV by contaminated blood. JEWISH AIDS TRUST – Walsingham House, 1331 High Road, London, N20 9HR. Tel 020 8446 8228/ Fax 020 8446 8227. Provides the whole Jewish community with HIV/AIDS education, counselling and support. Financial support where appropriate. MACFARLANE TRUST (THE) – Alliance House, 12 Caxton Street, London, SW1H 0QS. Tel 020 7233 0342. Haemophiliacs with AIDS from infected blood. NATIONAL AIDS HELPLINE – 1st Floor, Cavern Court, 8 Mathew Street, Liverpool, L2 6RE. Helpline 0800 567 123. Leaflets, information and advice. POSITIVE HELP – 13a Great King St, Edinburgh, EH3 6QW. Tel 0131 558 1122. Practical Help. · HODGKIN'S DISEASE contact Lymphoma Association · HOLT-ORAM SYNDROME HOLT-ORAM SYNDROME SUPPORT GROUP – Andrew Sigsworth, 21 Forth Road, Redcar, Cleveland, TS10 1PN. Tel/Fax 01642 501 283. E-Mail HOLT.ORAM@BTINTERNET.COM · HOMOSEXUALITY for Parents of see also Parents’ Friend under Parents GAY AND LESBIAN LEGAL ADVICE (GLAD) – Room H2, 10-14 Macklin Street, London, WC2B 5NF. Tel 020 7837 5212. Legal advice line for lesbians and gay men. LONDON FRIEND (serves all UK) – 86 Caledonian Road, Kings Cross, London, N1 9DN. Tel 020 7837 3337. Helpline for lesbians, gay men, bisexuals, their parents and friends. Information and counselling. www.londonfriend.org.uk office@londonfriend.org.uk · HORMONE REPLACEMENT THERAPY contact Amarant Trust under Menopause, also see under Women’s Health · HUNTER SYNDROME contact Society for Mucopolysaccharide Diseases under Metabolic Dis. · HUNTINGTON'S DISEASE HUNTINGTON'S DISEASE ASSOCIATION – 108 Battersea High Street, London, SW11 3HP. Tel 020 7223 7000/Fax 020 7223 9489. Offers Fact Sheets, booklets, newsletters, welfare and respite care grants. · HURLER SYNDROME contact Society for Mucopolysaccharide Diseases under Metabolic Diseases · HVM see under Gut Motility Disorders · HYDROCEPHALUS see under Spina Bifida · HYPER 1ge SYNDROME contact Primary Immunodeficiency Association under Immune Deficiency Syndromes · HYPERACTIVITY
see also under Special Educational
Needs and Attention Deficit Disorder HYPERACTIVE CHILDREN'S SUPPORT GROUP – Sally Bunday, 71 Whyke Lane, Chichester, PO19 2LD. Tel 01903 725 182 (Mon-Fri 10am-1pm)/Fax 01903 734 726. Advice and support. Sae please. · HYPERCHRONDOPLASIA contact Restricted Growth Association under Growth · HYPEREXPLEXIA also known as Stiff Baby Syndrome HYPEREXPLEXIA CONTACT GROUP – Stephanie Samson, 216 Westcott Crescent, Hanwell, London, W7 1NU. Tel 020 8578 0456. · HYPERGAMMAGLOBULINAEMIA contact Primary Immunodeficiency Association under Immune Deficiency Syndromes · HYPERSENSITIVE ARTERITIS contact Arthritis Care also Stuart Strange Trust under Wegener’s Granulomatosis · HYPERSENSITIVITY VASCULITIS see Stuart Strange Trust under Wegener’s Granulomatosis · HYPERTRIGLYCERIDAEMIA see under Heart · HYPERTROPHIC CARDIOMYOPATHY see under Heart · HYPERTHYROIDISM/HYPOTHYROID-ISM see under Thyroid · HYPOPITUITARISM contact GHD Support Group under Growth Hormone Deficiency · HYPOHYDROTIC ECTODERMAL DYSPLASIA contact Ectodermal Dysplasia Support Group · HYPOMELANOSIS OF ITO HYPOMELANOSIS OF ITO SUPPORT GROUP – Sandra Field, 33 Fernworthy Close, Shiphay, Torquay, TQ2 7JQ. Tel 01803 401 018. Support and information, newsletters, linking parents where possible. No charge but donations are welcome. · HYPSARRHYTHMIA see under West Syndrome · HYSTERECTOMY see under Women’s Health |
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