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Support groups

 
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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Information supplied by g-text. Buy the print version of the catalogue for only £10 from this address:
 FREEPOST NWW6775, BLACKPOOL. FY4 3GA.

·   FABRY’S DISEASE

FABRY’S DISEASE SUPPORT GROUP – Suzanne Hill, 10 Broadmeadow Rd, Wyke Regis, Weymouth, DT4 9BS.  Tel 01305 774 443.  Information/Contact.

·   FACIAL DISFIGUREMENT see under Disfigurement

·   FACIOAURICULOVERTEBRAL SYNDROME see under Goldenhar Syndrome

·   FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY contact FSH Muscular Dystrophy Support Group under Muscular Dystrophy

·   FAMILIAL ATHEROSCLEROSIS contact Family Heart Association under Heart

·   FAMILIAL GOUT/FAMILIAL JUVENILE GOUT (Lesch-Nyhan Syndrome) contact PUMPA under Metabolic Diseases

·   FAMILIAL HAEMORRHAGIC TELANG-IECTASIA contact Telangiectasia Group

·   FAMILIAL HYPERCHOLESTEROLAE-MIA contact Family Heart Association under Heart

·   FAMILIAL HYPERLIPIDAEMIA contact Family Heart Association under Heart

·   FAMILIAL SPASTIC PARAPLEGIA also known as Strumpell-Lorrain

FSP SELF HELP GROUP – Mrs Sally Langton, 116 Queens Road, Leicester, LE2 3FL.  Tel 0116 270 0450.  Collecting details on how the disease affects different families, ie age of onset, degree of disability and passes this information to research organisations.

·   FAMILY see also under Parents

AFTERMATH – PO Box 414, Sheffield, S4 7RT.  Tel/Fax 0114 275 8520.  Support and counselling for families of serious offenders.

CONTACT A FAMILY – 170 Tottenham Court Road, London, W1P 0HA.  Tel 020 7383 3555/Fax 020 7383 0259.  Network of local groups for parents of children with special needs.  Assists with the setting up new groups.  Contact address for a large number of support groups.  www.cafamily.org.uk/

FAMILY CRISIS LINE – 1 York Road, Woking, Surrey, GU22 7XH.  Tel 01483 722 533 (10am-10pm).  Confidential service for those suffering from any problem, bereavement, grief, depression, stress.

FAMILY RIGHTS GROUP – The Print House, 18 Ashwin Street, London, E8 3DL.  Tel 020 7923 2628/Fax 020 7923 2683.  Assists families with children in care or residential accommodation or involved in child protection procedures.

FAMILY SERVICE UNITS – 207 Old Marylebone Road, London, NW1 5QP.  Tel 020 7402 5175/Fax 020 7724 1829.  Counselling, welfare and legal advice.  Offices in all areas of the United Kingdom.

INSTITUTE OF FAMILY THERAPY – 24-32 Stephenson Way, London, NW1 2HX.  Tel 020 7391 9150/Fax 7391 9169.  Family and couple therapy.  Problems for families, children, adolescents, relation-ships, divorce, separation, illness and bereavement.

IN TOUCH – Ann Worthington, 10 Norman Rd, Sale, Cheshire, M33 3DF.  Tel 0161 905 2440.  Informal contacts for parents of children with rare disorders to offer and receive support and exchange information.

NATIONAL FAMILY MEDIATION – 9 Tavistock Place, London, WC1H 9SN. Tel 020 7383 5993/Fax 7383 5994.  Provides an impartial mediator following family breakdown due to divorce or separation.

·   FANCONI ANAEMIA (and other rare congenital aplastic anaemias)

FAB – Ann & Rick Dudarenko, 82 Park Hills Road, Bury, BL9 9AP.  Tel 0161 797 4114.  Provides news, information and support.

·   FAT WOMEN To diseases and conditions

FAT WOMEN’S GROUP – Diana Pollard, c/o Size Suite 147, 56 Gloucester Road, Kensington, SW7 4UB.  To celebrate fat women.  Promotes events, ad hoc meetings, campaigning and networking etc.

·   FEET

SOLE MATES – Ann Cross, 46 Gordon Road, Chingford, London, E4 6BU.  Tel 020 8524 2423.  For people with odd-sized feet or only one foot.  Sae.

·   FEMINISING TESTES SYNDROME see under Androgen Insensitivity

·   FETAL ANTI-CONVULSANT SYNDROME

FACS (National Fetal Anti-Convulsant Group) – Linda Hamilton, Newton of Brux, Glenkindie, Aberdeenshire, AB33 8RX.  Tel 01975 571 340.  E-Mail FACSLINE@aol.com

·   FIBROMYALGIA

FIBROMYALGIA ASSOCIATION – PO Box 206, Stourbridge, West Midlands, DY9 8YL.  Tel 01384 820 052/Fax 869 467  Offers counselling, information and support.  E-Mail fms@cableinet.co.uk

STIFF UK – PO Box 1484, Newcastle, Staffs, ST5 7UZ.  01782 562 366.  For families and sufferers.

·   FIBROSING ALVEOLITUS see British Lung Foundation under Lung

·   FIRST ARCH SYNDROME contact Treacher-Collins Syndrome Support Group

·   FLOATING HARBOR SYNDROME

FLOATING HARBOR SYNDROME CONTACT GROUP – Sue Sinclair, 27 Hatfield Road, Dagenham, Essex, RM9 6JR.  Tel 020 8517 6842.

·   FOSTERING see under Adoption and Fostering

·   FRAGILE X

FRAGILE X SOCIETY – Mrs Lesley Walker, 53 Winchelsea Lane, Hastings, TN35 4LG.  Tel 01424 813 147.  Local support, advice and information.

·   FRANCESCHETTI-KLEIN SYNDROME contact Treacher-Collins Syndrome Support Group

·   FRIEDREICH'S ATAXIA see under Ataxia

·   FUCOSIDOSIS contact Society for Mucopoly-saccharide Diseases under Metabolic Diseases

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