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Support groups

 
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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Information supplied by g-text. Buy the print version of the catalogue for only £10 from this address:
 FREEPOST NWW6775, BLACKPOOL. FY4 3GA.

·   EAGLE-BARRETT SYNDROME see under Stoma

·   EATING DISORDERS

EATING DISORDERS ASSOCIATION – 1st Floor, Wensum House, 103 Prince of Wales Road, Norwich, NR1 1DW.  Tel 01603 619 090/Fax 01603 664 915. www.edauk.com      info@edauk.com

OVEREATERS ANONYMOUS – PO Box 19, Stretford, Manchester, M32 9EB.  Tel 07000 784 985.  12 step recovery programme.

·   ECTODERMAL DYSPLASIA

ECTODERMAL DYSPLASIA SUPPORT GROUP – Diana Perry, ‘Dryfesdale’, 108 Charlton Lane, Cheltenham, GL53 9EA.  Tel 01242 231 754/0374 465 712.  E-Mail ed.support@virgin.net

·   ECTOPIA VESICAE see under Bladder

·   ECTOPIC PREGNANCY

ECTOPIC PREGNANCY TRUST – Hillingdon Hospital, Pield Heath Road, Uxbridge, UB8 3NN.  Tel 01895 238 025.  www.ectopic.org.uk/

·   ECZEMA To diseases and conditions

NATIONAL ECZEMA SOCIETY – Hill House, Highgate Hill, London, N19 5NA.  Tel 020 7281 3553/Fax 020 7281 6395/Helpline 0870 241 3604.  Information, advice and support.  www.eczema.org

·   EDWARD’S SYNDROME contact SOFT under Trisomy

·   EDUCATION/EDUCATION AT HOME (information on educating your child at home).  See also under Bullying and Special Educational Needs

ADVISORY CENTRE FOR EDUCATION – 1c Aberdeen Studios, 22 Highbury Grove, London, N5 2DQ.  Tel 020 7354 8318/Fax 020 7354 9069/ Helpline 020 7354 8321.  Independent advice.

EDUCATION OTHERWISE – PO Box 7420, London, N9 9SG.  Tel 0870 7300074.

HOME EDUCATION ADVISORY SERVICE – PO Box 98, Welwyn Garden City, AL8 6AN.  Tel/Fax 01707 371 854.  www.heas.org.uk    admin@heas.org.uk

WES/(WORLD-WIDE EDUCATION) HOME SCHOOL – 17 Blagrave House, Reading, RG1 1QA.  Tel 0118 958 9993.  Course and tutorial support for parents wishing to educate children age 5-11 at home.

·   EDUCATION OF SICK CHILDREN

NATIONAL ASSOCIATION FOR THE EDUCAT-ION OF SICK CHILDREN – 18 Victoria Park Square, Bethnal Green, London, E2 9PF.  Tel 020 8980 8523/Fax 8980 3447.  Advice and information for parents of sick children.  www.sickchildren.org.uk

·   EHLERS DANLOS SYNDROME

EHLERS-DANLOS SUPPORT GROUP – PO Box 335, Farnham, Surrey, GU10 1XJ.  Tel 01252 690 940/Fax 01252 404 573.    www.ehlers-danlos.org  director@ehlers-danlos.org

·   EKBOM

THE EKBOM'S SUPPORT GROUP – Mrs E W Gill, 18 Rodbridge Drive, Thorpe Bay, Essex, SS1 3DF.

·   ELDERLY CARE also under Abuse, Disability, Loneliness and Carers

CINNAMON TRUST (THE) – Foundry House, Foundry Square, Hayle, Cornwall, TR27 4HH.  Tel 01736 757 900.  Charity for elderly people and their pets.  Volunteers help elderly owners with day to day care and fostering when in hospital.  Register of UK old peoples homes accepting pets.

COUNSEL AND CARE –Twyman House, 16 Bonny Street, London, NW1 9PG.  Advice line 0845 300 7585.  Tel 020 7485 1550/Fax 7267 6877.  Advice on welfare benefits, help in the home, funding in homes, national database private care and nursing agencies.  advice@counselandcare.demon.co.uk

ELDERLY ACCOMMODATION COUNSEL – 3rd Floor, 89 Albert Embankment, London, SE1 7TP.  Tel 020 7820 1343/Fax 7820 3970.  Nationwide database of all forms of accommodation for elderly people.  Advice on accommodation most suited to needs. www.housingcare.org    enquiries@e-a-c.demon.co.uk

RELATIVES & RESIDENTS ASSOCIATION – 5 Tavistock Place, London, WC1H 9SN.  Confidential helpline 020 7916 6055/Fax 7916 6093. Information for people thinking of moving into a home for older people or caring for someone in a home.  Advice on fees, homes and standards.  Supports local groups.

·   ELECTROMAGNETIC SENSITIVITY

CIRCUIT – PO Box 1UZ, Newcastle Upon Tyne, NE99 1UZ.  Confidential support group for people with electrical sensitivity brought on by their exposure to invisible electromagnetic fields.  Information and advice.  Sae please.

POWERWATCH – Jean & Alasdair Philips.  Tel 0897 100 800 (premium rate).  Provides information and advice about the effects of electric and magnetic fields on health.

·   ELLIS-VAN CREVELD SYNDROME

ELLIS-VAN CREVELD FOUNDATION – Yvonne Sutton, Farthingdale Farm, Hackmans Lane, Purleigh, CM3 6RW.  Tel 01621 828 914.

·   EMG SYNDROME contact Beckwith-Weidmann Support Group

·   EMOTIONALLY DISTURBED

PORTIA TRUST – Ken Norman, The Croft, West Common, Bowness on Solway, Cumbria, CA5 5AG.  Tel/Fax 016973 51820.  Aims to help the emotionally disturbed, particularly if this involves trouble with the law.  www.portia.org.uk

·   EMPHYSEMA see British Lung Foundation under Lung

·   ENCEPHALITIS

ENCEPHALITIS SUPPORT GROUP – 44a Market Place, Malton, North Yorkshire, YO17 7LW.  Tel 01653 699 599/Fax 699 599.  Information, advice and support.  www.glaxocentre.merseyside.org/enceph.html  encephalitissupportgroup@compuserve.com

·   ENCEPHALOFACIAL ANGIOMATOSIS contact Sturge-Weber Foundation

·   ENCEPHALOMYELITIS MYALGIA see under Myalgic Encephalomyelitis

·   ENCOPRESIS see under Bed Wetting

·   ENDOCHRONDROMATOSIS see under Ollier’s Disease

·   ENDOMETRIOSIS To diseases and conditions

NATIONAL ENDOMETRIOSIS SOCIETY – Suite 50, Westminster Palace Gardens, 1-7 Artillery Row, London, SW1P 1RL.  Helpline 020 7222 2776/Fax 7222 2786.  Local group and contacts.  Information.

·   ENURESIS see under Bedwetting

·   ENGLEMANS DISEASE also known as Diaphyseal Dysplasia

No group currently exists but June Hartley would be interested in starting a group or corresponding with others.  Please write to Mrs June Hartley, 72 Long-house Road, Mixenden, Halifax, Yorks, HX2 8RF.

·   ERB’S PALSY

ERB’S PALSY SUPPORT GROUP – Karen Hillyer, 2 Willoughby Cl, Coventry, CV3 2GJ.  Tel 024 76452 321.  Information/advice.  erbspalsygroup@supanet.com

·   EOSINOPHILIC GRANULOMA see under Histiocystosis

·   EPIDERMAL NAEVUS SYNDROME see HME Contact Group under Hemimegalencephaly

·   EPIDERMOLYSIS BULLOSA see under Dystrophic Epidermolysis Bullosa

·   EPILEPSY To diseases and conditions

BRITISH EPILEPSY ASSOCIATION – New Anstey House, Gate Way Drive, Yeadon, Leeds, LS19 7XY.  Tel 0113 210 8800/Fax 0113 391 0300/Helpline 0808 800 5050.  www.epilepsy.org.uk    epilepsy@bea.org.uk

DAVID LEWIS ORGANISATION – Mill Lane, Warford, Alderley Edge, Cheshire, SK9 7UD.  Tel 01565 640 000/Fax 01565 872 829.  Residential treatment and rehabilitation for adults/children.  Out patient facilities and consultancy.

EPILEPSY AND THE YOUNG ADULT – 13 Crondace Road, London, SW6 4BB.  Tel 020 7736 0123/Fax 020 7384 2630.  Produces a booklet “Epilepsy and the Young Adult” and offers a comprehensive information and advice service.

EPILEPSY BEREAVED – PO Box 112, Wantage DO, Oxon, OX12 8XT.  Tel/Fax 01235 772 850.  Support line for bereaved parents 01235 772 852.  Supporting bereaved through epilepsy.  Promoting research.         www.bodley.ox.ac.uk/external/epilepsy

FABLE (For A Better Life with Epilepsy) – ‘Ashgate House’, 9-13 Ashgate Road, Sheffield, S10 3BZ.  Tel 0114 268 4971/Fax 0114 267 8894.  Freephone advice 0800 521 629.  Information/support for vagus nerve stimulation therapy in epilepsy.  fablevns@aol.com

NATIONAL SOCIETY FOR EPILEPSY – Chesham Lane, Chalfont St. Peter, SL9 0RJ.  Tel 01494 601 300/Fax 871 927.  Helpline 01494 601 400.  Medical research, outpatient care, assessment, residential care, information and training etc.  www.epilepsynse.org.uk

·   EPISPADIAS see under Bladder

·   ERTHROGENESIS IMPERFECTA contact Diamond-Blackfan Anaemia Support Group c/o Contact a Family under Family

·   ERYTHROMELAGIA contact Raynaud’s & Scleroderma Association under Raynaud’s

·   EXOMPHALOS contact Beckwith-Weidemann Support Group

·   EXSTROPHY OF THE BLADDER see under Bladder also Stoma

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