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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Information supplied by g-text.
Buy the print version of the catalogue for only £10 from this
address: · CAESAREAN DELIVERIES CAESAREAN SUPPORT NETWORK – Yvonne Williams, 55 Cooil Drive, Douglas, IoM, IM2 2HF. Tel 01624 661 269. Help, information and advice for those who have had/may need a Caesarean section. · CALVE-PERTHES DISEASE see under Perthes Disease · CANCER BREAST CANCER CARE – Kiln House, 210 New Kings Road, London, SW6 4NZ. Tel 020 7384 2984/Fax 7384 3387. Helpline 0808 800 6001. Information and emotional support. Regional services. www.breastcancercare.org.uk bcc@breastcancercare.org.uk BRITISH ASSOCIATION FOR COUNSELLING – 1 Regent Place, Rugby, CV21 2PJ. Tel 01788 550 899. A4 sae for a comprehensive list of local counsellors. BRISTOL CANCER HELP CENTRE – Grove House, Cornwallis Grove, Clifton, Bristol, BS8 4PG. Tel 0117 980 9500/Fax 923 9184/Helpline 980 9505. Complementary therapies and self-help approaches. www.bristolcancerhelp.org info@bristolcancerhelp.org CAMP QUALITY UK – PO Box 5088, Derby, DE23 9SA. Tel/Fax 07000 422 677. A non-profit making charitable organisation providing “holidays of a lifetime” in the UK for those children who are suffering from cancer. Sae. CANCER AND LEUKAEMIA IN CHILDHOOD – Abbey Wood, Bristol, BS34 7JU. Tel 0117 311 2600/Fax 0117 311 2649. Practical care and support for children with cancer or leukaemia and their families. www.clic.uk.com clic@clic-charity.demon.co.uk CancerBACUP – 3 Bath Place, Rivington Street, London, EC2A 3JR. Information and support for people with cancer, their families and friends. Freephone helpline (cancer nurse) 0808 800 1234. Information 020 7696 9003. www.cancerbacup.org.uk CANCER BLACK CARE – 16 Dalston Lane, London, E8 3AZ. Tel 020 7249 1097/Fax 7249 0604. Providing practical, physical and emotional support for people affected by cancer. CANCER CARE SOCIETY – Jane Scarth House, 39 The Hundred, Romsey, Hants, SO51 8GE. Tel 01794 830 374/Fax 518 133. Counselling, support groups, a comprehensive range of approved complementary therapies. carer@cancer-care-soc.demon.co.uk CANCER LARYNGECTOMEE TRUST – Bill Moloney, Claremount House, Claremount Road, Halifax, HX3 6AW. Tel/Fax 01422 364 448. CANCERLINK – 11-21 Northdown Street, London, N1 9BN. Tel 020 7833 2818/Fax 7833 4963. Support and information. Directory of 700+ cancer self help and support groups. Helpline 0800 132 905. Asian helpline 0800 590 415. Young peoples helpline 0800 591 028. E-Mail cancerlink@cancerlink.org.uk CANCERKIN – Royal Free Hospital, Pond Street, Hampstead, London, NW3 2QG. Tel 020 7830 2323/ Fax 7830 2324. Extended rehabilitation for breast cancer patients, family support, professional inform. CHRISTIAN LEWIS TRUST – Child Care Centre, 62 Walter Road, Swansea, SA1 4PT. Tel 01792 480 500/Fax 480 700. Improving the quality of life for children with cancer. Emotional and practical support for families. enquiries@childrens-cancer-care.org.uk COLON CANCER CARE – 9 Rickett Street, London, SW6 1RU. Infoline 020 7381 9711/Fax 020 7381 5752. Provides information and funds research. www.coloncancer.org.uk admin@coloncancer.org.uk DR JAN DE WINTER CLINIC – 6 New Road, Brighton, BN1 1UF. Tel 01273 727 213. Advice for those unhappy with their NHS diagnosis and advice. HOSPICE INFORMATION SERVICE – St Christopher’s Hospice, 51-59 Lawrie Park Road, London, SE26 6DZ. Tel 020 8778 9252. Publishes a comprehensive directory of UK hospices. JAMES McDONALD CANCER TRUST – Jo McDonald, PO Box 181, Weston-Super-Mare, BS22 6JX. Tel 01934 510 230. Helpline 0468 525 525. Information, advice, support and counselling. Compl-ementary therapies and holidays for cancer patients. MACMILLAN CANCER RELIEF – 89 Albert Embankment, London, SE1 7UQ. Tel 020 7840 7840. Funds specialist Macmillan nurses and doctors, buildings for cancer treatment and care, grants for patients in financial difficulties. MARC’S LINE (Melanoma And Related Cancers of the Skin) – Dermatology Treatment Centre, Level 3, Salisbury District Hospital, Salisbury, Wiltshire, SP2 8BJ. Tel 01722 415 071. Resource Centre and helpline. Education about skin cancer. MARIE CURIE CANCER CARE – 28 Belgrave Square, London, SW1X 8QG. Tel 020 7235 3325. Provides care in patients' homes and in 11 nationwide centres. Supports medical research. NATIONAL CANCER ALLIANCE (THE) – PO Box 579, Oxford, OX4 1LP. Tel 01865 793 566/Fax 01865 251 050. Campaigns for higher quality Cancer Services for all who need them. Publishes a directory of Cancer Specialists £5.70 incl. p&p. NATIONAL HEREDITARY BREAST CANCER – Wendy Watson, St Anne’s Cottage, Over Haddon, . Tel 01629 813 000/Fax 813565. Helpline for those who feel that they are at high risk of breast cancer due to family history. Network, advice, lectures for health care professionals. NEW APPROACHES TO CANCER – St Peter’s Hospital, Guildford Road, Chertsey, KT16 0PZ. Tel 0800 389 2662. Holistic and self-help methods of treatment. help@anac.org.uk www.anac.org.uk OESOPHAGEAL PATIENTS ASSOCIATION – David Kirby, 16 Whitefields Crescent, Solihull, B91 3NU. Information, advice and support for oesophageal cancer patients and their families. Meetings twice a year in regional centres. PROSTATE CANCER CHARITY (THE) – Du Cane Road, London, W12 0NN. Helpline 020 8383 1948/Office 8383 8124/Fax 8383 8126. Information support and advice. www.prostate-cancer.org.uk info@prostate-cancer.org.uk See also Prostate Research Campaign under Prostate RETINOBLASTOMA SOCIETY – St Bartholomew's Hospital, West Smithfield, London, EC1A 7BE. Tel 020 7600 3309/Fax 020 7600 8579. Local contacts. Information for families and health care professionals. www.rbsociety.org.uk rbinfo@rbsociety.org.uk SARGENT CANCER CARE FOR CHILDREN – Diane Yeo, 14 Abingdon Road, London, W8 6AF. Tel 020 7565 5100 /Fax 020 7565 5120. Aims to support all young people with cancer and their families through high quality counselling, financial help and practical care. WCT – Wessex Cancer Trust, Bellis House, 11 Westwood Road, Southampton, SO17 1DL. Tel 023 80775 611/Fax 023 80672 266. Support and inform-ation on a wide range of cancers, incl. testicular. www.wessexcancer.org wct@wessexcancer.org WNCCC (Women’s Nationwide Cancer Control Campaign) – Suna House, 128/130 Curtain Road, London, EC2A 3AQ. Tel 020 7729 4688/Fax 020 7613 0771. Information and materials to encourage and support the prevention/early detection of cancer in women. www.wnccc.org.uk admin@wnccc.org.uk · CANDIDA see under Cystitis · CANDIDA OVERGROWTH NATIONAL CANDIDA SOCIETY – Dr Christine Tomlinson, PO Box 151, Orpington, Kent, BR5 1UJ. Information for people with candida overgrowth and health care professionals. www.candida-society.org.uk · CARBON MONOXIDE EXPOSURE CO SUPPORT – Debbie Davis, 25 Swarcliffe Road, Leeds, LS14 5LE. Tel 0113 260 5112/Fax 0113 228 1505. E-Mail Ddavis2446@AOL.com · CARDIOMYOPATHY see Cardiomyopathy Association under Heart · CARERS ABLE COMMUNITY CARE – 2nd Floor, West Wing, 69-75 Thorpe Road, Norwich, NR1 1UA. Tel 01603 764 567/Fax 761 655. Nationwide rotational live-in-home carer service. www.uk.care.com ablemg@aol.com ANCHOR CARE ALTERNATIVES – 206 Worple Road, Wimbledon, London, SW20 8PN. Tel 020 8946 8202/Fax 8944 7431. Care workers available to assist people in their own homes on a flexible basis. ACT – Orchard House, Orchard Lane, Bristol, BS1 5DT. Tel 0117 922 1556/Fax 0117 930 4707. For families caring for a child with a life-threatening or terminal condition. Sae. www.act.org.co.uk E-Mail info@act.org.uk CROSSROADS ASSOCIATION – 10 Regent Place, Rugby, CV21 2PN. Tel 01788 573 653/Fax 01788 565 498. Advice and information for people who care for a person with care needs at home. CARERS NATIONAL ASSOCIATION – 20-25 Glasshouse Yard, London, EC1A 4JT. Tel 020 7490 8818/Fax 020 7490 8824. Information and support for those caring for relatives or friends. Carersline freephone 0808 808 7777, 10am - 12pm, 2pm - 4pm. PRINCESS ROYAL TRUST FOR CARERS – 142 Minories, London, EC3N 1LB. Tel 020 7480 7788/Fax 020 7481 4729. A national network of Carers Centres who provide practical help, information and support. · CARNITINE DEFICIENCY contact Children’s Mitochondrial Disease Network under Mitochondrial · CARPENTER SYNDROME contact Craniofacial Support Group under Craniofacial · CATALEPSY/CATAPLEXY contact Narcolepsy Association under Narcolepsy · CAVERNOUS HAEMANGIOMA see under Disfigurement · CENTRAL NUCLEAR MYOPATHY contact Myotubular Myopathy Support Group c/o Contact a Family under Family · CEREBELLAR ATAXIA / ATROPHY / DEGENERATION see under Ataxia · CEREBRAL GIANTISM see under Sotos Syndrome · CEREBRAL PALSY see also Listening Books and Hyperbaric Oxygen Trust under Brain Injured SCOPE – Kirsty Semple, 6 Market Road, London, N7 9PW. Tel 020 7619 7100/Fax 020 7619 7399. Helpline 0808 800 3333. Supports 250+ local groups, provides services, advice and information. SOCIETY OF STARS – 4a Huntingdon Estate, Bethnal Green Road, London, E1 6JU. Tel 020 7793 8833/Fax 7739 9488. Advice, information and fund-raising for children and adults with cerebral palsy. THE LEARNING CENTRE FOR DISABLED CHILDREN – Bradbury House, View Road, Cliffe Woods, Rochester, ME8 7DT. Tel 01634 220 540/ Fax 01634 220 530. Conductive education ages 0-5, conductive education holidays age 5-10. Living skills group for age 18-30 to further their independence. · CEREBROSIDE LIPIDOSIS contact Gauchers Association under Gaucher’s Disease · CHARCOT-MARIE-TOOTH contact CMT under Hereditary Motor & Sensory Neuropathy · CHEDIAK-HIGASHI SYNDROME see Primary Immuno-deficiency Association under Immune Deficiency Syndromes · CHILD ABUSE/DISTRESS/HELP see also Kidscape under Bullying CARELINE – Cardinal Heenan Centre, 326 High Rd, Ilford, IG1 1QP. Tel 020 8514 1177. Confidential telephone counselling service for children, young people and adults. Face to face service for adults. CHILDLINE – Freepost 1111, London, N1 0BR. Tel 020 7239 1000/Fax 020 7239 1001. Free national telephone helpline for children on 0800 1111 (24hrs). www.childline.org.uk infor@childline.org.uk · CHILDBIRTH see under Pregnancy advice · CHILDMINDERS/CHILDMINDING PROVISION DAYCARE TRUST –Shoreditch Town Hall Annexe, 380 Old Street, London, EC1V 9LT. Tel 020 7739 2866/Fax 020 7739 5579. Information, advice and publications for parents and childcare professionals. www.daycaretrust.org.uk info@daycaretrust.org.uk NATIONAL CHILDMINDING ASSOCIATION – Gill Haynes, 8 Masons Hill, Bromley, BR2 9EY. Tel 020 8464 6164/Fax 020 8290 6834. Information line 020 8290 8964. Membership organisation. Advice and information. Network of local support groups. PARENTS AT WORK – Sarah Jackson, 45 Beech Street, London, EC2Y 8AD. Tel 020 7628 3565/Fax 020 7628 3591. Information on child care provision for working parents. · CHILDREN IN CARE see Family Rights Group under Family · CHOROIDERAEMIA see under Retinitis Pigmentosa · CHRISTMAS DISEASE see under Haemophilia · CHROMOSOMES (RARE DISORDERS) see UNIQUE under Rare Chromosome Disorders · CHROMOSOME 4 contact WHSSG under Wolf-Hirschorn Syndrome · CHROMOSOME 5 see under Cri du Chat Syndrome · CHROMOSOME 13 TRISOMY, CHROM-OSOME 18 TRISOMY see SOFT UK under Trisomy · CHROMOSOME 21 TRISOMY see under Down’s Syndrome · CHROMOSOME 22q 11 CHROMOSOME 22q 11 GROUP – Phil Mellor, PO Box 48, Altrincham, Cheshire, WA14 5FB. Tel 0161 485 5155. · CHRONDROECTODERMAL DYSPLA-SIA see under Ellis Van Creveld Syndrome · CHRONIC DEGENERATIVE CHOREA see under Huntingdon’s Disease · CHRONIC FATIGUE SYNDROME see under Myalgic
Encephalomyelitis · CHRONIC GRANULOMATOUS DISORDER CGD RESEARCH TRUST – Rosemarie Rymer, Manor Farm, Wimborne St Giles, Dorset, BH21 5NL. Tel/Fax 01725 517 977. http://www.cgd.org.uk rosemarie.cgdrt@dial.pipex.com · CHRONIC MUCOCUTANEOUS CANDID-IASIS see Primary Immunodeficiency Association under Immune Deficiency Syndromes · CHRONIC OBSTRUCTIVE AIRWAYS DISEASE see under Lung · CHURG-STRAUSS SYNDROME see under Guillaine-Barre Syndrome, Arthritis Care, Stuart Strange Trust under Wegener’s Granulomatosis · CJD see under Creutzfeldt-Jakob · CLEFT LIP CLEFT LIP AND PALATE ASSOCIATION – 235-237 Finchley Road, London, NW3 6LS. Tel 020 7431 0033/Fax 020 7431 8881. Support, advice, educational material. www.clapa.com info@clapa.com · CLOACAL EXSTROPHY see under Stoma, also Bladder · CLOVERLEAF SYNDROME see under Craniofacial · CLUB FOOT contact STEPS under Lower Limb Abnormalities · COLDS see Colds & Flu Helpline under Influenza · COELIAC (DERMATITIS
HERPETIFORMIS) see also BDF under Digestive
Disorders COELIAC SOCIETY – PO Box 220, High Wycombe, Bucks, HP11 2HY. Tel 01494 437 278 (9am – 4.45pm). For those medically diagnosed. Advice on diets and on where to obtain gluten-free food. · COFFIN-LOWRY SYNDROME COFFIN-LOWRY SYNDROME SUPPORT GROUP – Mrs L Nolan, 25 Ashling Gardens, Denmead, Waterlooville, PO7 6PR. Tel 023 92610 226. · COGAN SYNDROME COGAN SYNDROME SUPPORT GROUP – Marcia Firth, 3 Fernbank Avenue, Bramley, Leeds, LS13 1BS. Tel 0113 257 8550. · COHEN SYNDROME COHEN SYNDROME SUPPORT GROUP – Mrs F Osborn, 7 Woods Court, Brackley, Northamptonshire, NN13 6HP. Tel 01280 704 515. · COLD SORES COLD SORE ADVICE LINE – Marian Nicholson, 41 North Road, London, N7 9DP. Send sae for advice sheets or Tel 020 7700 1171 (noon to 2pm only). · COLITIS see under Crohn’s Disease · COLOBOMA contact MACS under Micropthalmia · COLONIC HYDROTHERAPY see under Irritable Bowel Syndrome · COLOSTOMY see Stoma · COMBAT STRESS see Ex-Services Mental Welfare Society under Mental Illness · COMBINED IMMUNE DEFICIENCY DIS-EASE contact Primary Immunodeficiency Association under Immune Deficiency Syndromes · CONE DYSFUNCTION see under Nystagmus · CONGENITAL ADRENAL HYPERPLASIA CONGENITAL ADRENAL HYPERPLASIA – Miss M L Cull, 17 Newton Road, Lichfield, Staffs, WS13 7EF. Tel 01543 252 961. Support and information. · CONGENITAL AGLOSSIA No group currently exists but Mr John Wright would be happy to correspond possibly with a view to creating a group. 63 Caldwell Road, Nuneaton, Warwickshire, CV11 4QE · CONGENITAL APLASTIC ANAEMIA see under Fanconi Anaemia · CONGENITAL AREGENERATIVE ANAEMIA contact Diamond-Blackfan Anaemia Support Group c/o Contact a Family under Family · CONGENITAL CERVICO-THORACIC-VERTE-BRAE SYNOSTOSIS contact Klippel-Feil Syndrome c/o Contact a Family under Family · CONGENITAL CENTRAL HYPOVENTILATION SYNDROME (originally known as Ondine’s Curse) ONDINE’S SUPPORT GROUP – Linda Middleton, 24 Larners Road, Dereham, Norfolk, NR19 1LE. Tel 01362 696 509. Provides information and contacts. · CONGENITAL DISLOCATED HIP contact STEPS under Lower Limb Abnormalities · CONGENITAL HYPOPLASTIC ANAEMIA contact Diamond-Blackfan Anaemia Support Group c/o Contact a Family under Family · CONGENITAL MELANOCYTIC NAEVUS CONGENITAL MELANOCYTIC NAEVUS SUPP-ORT GROUP – Bridge Chapel Centre, Heath Road, Garston, Liverpool, L19 4XR. Tel 0151 281 9716. · CONGENITAL MUSCULAR DYSTROPHY CMD SUPPORT – Mrs Marion H West, 21 Morrison Drive, Pitcorthie, Dunfermline, Fife, KY11 5DJ. Tel 01383 736 084. E-Mail cmd@globalnet.co.uk · CONGENITAL NEUTROPENIA contact Primary Immunodeficiency Association under Immune Deficiency Syndromes, also Shwachman Syndrome Support Group · CONGENITAL OSSEOUS TORTICOLLIS contact Klippel-Feil Syndrome Group c/o CaF under Family · CONGENITAL PANCREATIC INSUFFICIENCY contact Shwachman Syndrome Support Group · CONGENITAL RUBELLA DAMAGE contact SENSE under Deaf/Blind · CONGENITAL THOMSEN’S MYOTONIA contact Myotonic Dystrophy Support Group · CONSTIPATION see BDF under Digestive
Disorders · CONSTRUCTION SITE ACCIDENTS CONSTRUCTION SAFETY CAMPAIGN – Tony O’Brien, c/o Trussler Hall, 78 Grundy Street, London, E14. Tel 020 7537 7220. Campaigns on health and safety issues in the construction industry. Support for those killed or injured in construction site accidents. · CONTRACEPTION/SEX ADVICE BROOK – 421 Highgate Studios, 53-79 Highfield Road, London, NW5 1TL. Helpline 0800 0185 023. Tel 020 7284 6040. www.brook.org.uk · COOLEY’S ANAEMIA see under Thalassaemia · COPROLALIA SYNDROME see under Tourette Syndrome · CORI SYNDROME contact Association for GSD under Glycogen Storage Disease · CORNELIA DE LANGE SYNDROME (Amsterdam Dwarf Syndrome) CORNELIA DE LANGE SYNDROME FOUND-ATION – Tall Trees, 106 Lodge Lane, Grays, Essex, RM16 2UL. Tel 01375 376439. www.cdlsoutreach.org · CORPUS CALLOSUM ABSENCE see under Aicardi Syndrome · COSMETIC SURGERY see also under Disfigurement COSMETIC SURGERY NETWORK (THE) – PO Box 3410, London, N6 4EE. Tel/Fax 020 8209 0862. Passes patient experiences/information to prospective patients. www.cosmeticsurgerynetwork.co.uk · COT-DEATH see also SANDS under Stillbirth CARE OF NEXT INFANT – Room C1, Stephenson Unit, Sheffield Children’s Hospital, Western Bank, Sheffield, S10 2TH. Tel 0114 276 6452. Support for families of subsequent babies following a cot death. COT DEATH RESEARCH AND SUPPORT FOR BEREAVED PARENTS – Jim McDonald, 117 High Street, Worle, Weston Super Mare, BS22 0HB. Tel 0468 525 525 (24 hour). Counselling and befriending. Funding research. Supplies monitoring equipment. COT DEATH SOCIETY (THE) – Maple House, Units 6 & 8, Padgate Business Park, Warrington, WA1 4JN. Tel 01925 850 086/Fax 851 943. Provides monitors free of charge, on medical referal only, to families of babies classed at risk from cot death.. FSID (Foundation for the Study of Infant Deaths) – Artillery House, 11-19 Artillery Road, London, SW1P 1RT. Tel 020 7222 8001/Fax 020 7222 8002/Helpline 020 7233 2090 (24 hours). www.sids.org.uk/fsid/ · CRANIOFACIAL (including Apert, Carpenter, Cloverleaf, Crouzon, Jackson-Weiss Pfeiffer, Saethe-Chotzen) CRANIOFACIAL SUPPORT GROUP – Steve Moody, 44 Helmsdale Road, Leamington Spa, Warwickshire, CV32 7DW. Tel 01926 334 629. Caters for craniosynostosis/ craniostenosis disorders such as saggital synostis and conditions featuring craniosynostosis. Sae for information. · CREUTZFELDT-JAKOB DISEASE CJD SUPPORT NETWORK – Birchwood, Heath Top, Ashley Heath, Market Drayton, TF9 4QR. Tel/Fax 01630 673 993/Helpline 01630 673 973. Advice, information, emotional and practical support. · CRI DU CHAT SYNDROME CRI DU CHAT SYNDROME SUPPORT GROUP – Mrs A Stokes, 7 Penny Lane, Barwell, Leicestershire, LE9 8HJ. Tel/Fax 01455 841 680. · CRIME - VICTIM SUPPORT VICTIM SUPPORT – Cranmer House, 39 Brixton Rd, London, SW9 6DZ. Tel 020 7735 9166/Fax 020 7582 5712. Helpline 0845 3030 900. Local Victim Support services provide emotional support, inform-ation and practical help for victims and witnesses. SAMM (Support After Murder and Manslaughter) – Cranmer House, 39 Brixton Road, London, SW9 6DZ. Tel 020 7735 3838. · CROHN'S DISEASE
see also BDF under Digestive Disorders CROHN'S IN CHILDHOOD RESEARCH ASSOC-IATION – Parkgate House, 356 West Barnes Lane, Motspur Park, Surrey, KT3 6NB. Tel 020 8949 6209/Fax 020 8942 2044. Promotes research. Offers help and support to sufferers and parents of sufferers. www.cicra.org support@cicra.org NATIONAL ASSOCIATION FOR COLITIS AND CROHN'S DISEASE – 4 Beaumont House, Sutton Road, St Albans, AL1 5HH. Tel 01727 844 296/Fax 862 550. Information and support through local groups. http://wwwnacc.org.uk. · CROUZON SYNDROME under Craniofacial · CRYING/SLEEPLESS BABIES/DEMAND-ING CHILDREN CRY-SIS – BM Cry-sis, London, WC1N 3XX. Helpline 020 7404 5011. For families of excessively crying, demanding babies and young children. Sae. · CULT VICTIMS CATALYST – Thames House, 65-67 Kingston Road, New Malden, KT3 3PB. Tel 020 8949 7877/Fax 020 8949 7833. Professional help for cult victims and their families. · CUSHING'S DISEASE/CUSHING SYNDROME ASSOCIATION FOR CUSHING'S TREATMENT AND HELP – Elaine Eldridge, 54 Powney Road, Maidenhead, SL6 6EQ. Tel 01628 670 389/Fax 415 603. Information and patient-to-patient contact. UK medical panel. E-Mail Cushingsacth@btinternet.com CUSHING CARE – Mrs V Howarth, Meadows, Woodplumpton Village, Preston, Lancashire, PR4 0LJ. Tel/Fax 01772 690 680. · CUTIS HYPERELASTICUM see under Ehlers-Danlos Syndrome · CYCLICAL VOMITING SYNDROME CYCLICAL VOMITING SYNDROME ASSOCIAT-ION – Nicola Kipping, 5 Anthony’s Avenue, Lilliput, Poole, Dorset, BH14 8JQ. Tel 01202 709 194. · CYSTIC ENCEPHALOMALACIA see under Porencephaly · CYSTIC FIBROSIS CYSTIC FIBROSIS TRUST – 11 London Road, Bromley, BR1 1BY. Tel 020 8464 7211/Fax 8313 0472. Befriending/advisory service at the local level. · CYSTIC HYGROMA see also Interstitial Cystitis under Cystitis CYSTIC HYGROMA & LYMPHANGIOMA SUPPORT – Pearl Fowler, Villa Fontane, Church Road, Worth, West Crawley, RH10 4RS. Tel 01293 885 901/Fax 01293 882 460. Information, contact and support for families and sufferers. · CYSTITIS CYSTITIS AND CANDIDA ADVICE SERVICE – Angela Kilmartin, Flat 9, 6-9 Bridgewater Square, London, EC2Y 8AH. Tel/Fax 020 7256 2993. INTERSTITIAL CYSTITIS SUPPORT GROUP – Anthony Walker, 76 High Street, Stony Stratford, MK11 1AH. Tel/Fax 01908 569 169. Contact. Information for medical professionals and the public. |
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