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A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Information supplied by g-text.
Buy the print version of the catalogue for only £10 from this
address: · BACK PAIN CHIROPRACTIC PATIENT’S ASSOCIATION – Prof. Tony Atkinson, 8 Centre One, Lysander Way, Old Sarum Park, Salisbury, SP4 6BU. Tel 01722 415 027/Fax 415 028. Information/advice on chiropractic treatment. Supports chiropractic research. NATIONAL BACK PAIN ASSOCIATION – Vincent Ryle, 16 Elmtree Road, Teddington, Middlesex, TW11 8ST. Tel 020 8977 5474/Fax 020 8943 5318. Local branch network. Information, advice and contacts. 101540.1065@compuserve.com THE BACK SHOP – 14 New Cavendish Street, London, W1M 7LJ. Tel 020 7935 9120/9148/Fax 7224 1903. Mail-order catalogue of useful products. · BANKRUPTCY see under Debt · BARDET-BEIDL SYNDROME contact LMBBS under Laurence-Moon-Bardet-Beidl · BARTH SYNDOME contact The Children’s Mitochondrial Disease Network under Mitochondrial Disease · BASAL CELL NAEVUS SYNDROME see under Gorlin Syndrome · BEAL’S CONTRACTURAL ARACHNOD-ACTYL see under Marfan · BECKWITH-WIEDEMANN SYNDROME BECKWITH-WIEDEMANN SUPPORT GROUP – Bob Baker, The Drum & Monkey, Hazelbury Bryan, Dorset, DT10 2EE. Tel 01258 817 573 (evenings)/ Fax 01202 205325/Mobile 0589 211 000. Support for parents, information and advice. Encourages medical research. Sae please. rbaker5165@aol.com · BED-WETTING ENURESIS RESOURCE AND INFORMATION CENTRE – 34 Old School House, Britannia Road, Kingswood, Bristol, BS15 8DB. Tel 0117 960 3060. Comprehensive information on bedwetting, day-wetting, soiling and encopresis. Large sae please. · BEHCET'S SYNDROME BEHCET'S SYNDROME SOCIETY – 3 Church Cl, Lambourn, Hungerford, RG17 8PU. Information, contacts, financial aid. Helplines 01488 7111, 0116 243 3540 and 0151 644 6909. www.behcets.org.uk info@behcets-society.fsnet.co.uk · BENZODIAZEPINE ADDICTION see under tranquilliser withdrawal · BEREAVEMENT see also Family Crisis Line under Family and The Samaritans under Samaritans COMPASSIONATE FRIENDS (THE) – 53 North St, Bristol BS3 1EN. Tel 0117 9665 202/Fax 9144 368. Helpline 0117 953 9639. National self-help group of bereveaved parents offering support and friendship to those similarly bereaved including siblings and grandparents. www.tcf.org.uk info@tcf.org.uk COPE – The Laura Centre, 4 Tower Street, Leicester, LE1 6WS. Tel 0116 254 4341/Fax 0116 254 5981. Counselling and information for anyone who has experienced the death of a child, or any child who has been affected by death. CRUSE BEREAVEMENT CARE – 126 Sheen Road, Richmond, TW9 1YU. Support, counselling, advice, information on practical matters for the bereaved. Tel 0870 167 1677. www.crusebereavementcare.org.uk info@crusebereavementcare.org.uk NATIONAL ASSOCIATION OF BEREAVEMENT SERVICES – 2nd Floor, 4 Pinchin Street, London, E1 1SA. Tel/Fax 020 7709 0505. Helpline 020 7709 9090. Puts callers in touch with their nearest service. Co-ordinates and supports bereavement services. NATIONAL CHILD DEATH HELPLINE – 0800 282 986, Evenings 7-10pm. Mon, Weds, Fri, 10am-1pm. SUDDEN DEATH SUPPORT ASSOCIATION – Sarah Adams, Chapel Green House, Wokingham, RG40 3ER. Tel 01189 790 790. For relatives or friends who have suffered sudden unexpected death. TWINS BEREAVEMENT GROUP – see TAMBA under Multiple Births · BEST’S DISEASE see under Retinitis Pigmentosa · BILIARY HYPOPLASIA/ATRESIA see Children’s Liver Foundation under Liver · BIRTH DEFECTS BIRTH DEFECTS FOUNDATION – Martindale, Cannock, WS11 2XN. Helpline 08700 707 020. Advice, information and support to families and those concerned about birth defects. help@birthdefects.co.uk · BIRTHMARKS see under Disfigurement · BISEXUAL BISEXUAL HELPLINE – PO Box 3325, London, N1 9EQ. Tel 020 8569 7500. Counselling and advice. · BLADDER BEES – Mrs J Holmes, 19 Churchill Gardens, London, W3 0JN. Tel 020 8993 3197 (evenings). Advice on exstrophy, epispadias and ectopia vesicae. · BLEPHAROSPASM see Dystonia Society under Dystonia · BLIND/PARTIALLY SIGHTED ACTION FOR BLIND PEOPLE – 14-16 Verney Road, London, SE16 3DZ. Tel 020 7635 4800/Fax 020 7635 4900. To enable blind and partially sighted people to enjoy equal opportunities in all aspects of life. www.afbp.org info@afbp.org ADA READING SERVICE FOR THE BLIND – Mrs A K Artus MBE, Dalewood Rise, Laverstock, Salisbury, SP1 1SF. Tel 01722 326 987. Volunteer readers will transfer written and printed material on to audio tapes provided by the client. ASSOCIATION OF VISUALLY HANDICAPPED OFFICE STAFF – BM AVIOS, London, WC1N 3XX. Tel 070 9121 5618. Membership open to those registered blind or partially sighted, also open to students and the unemployed. BBS (British Blind Sport) – Maurice Bright, 4/6 Victoria Terrace, Leamington Spa, CV31 3AB. Tel 01926 424 247. Aims to provide sporting opportunities for the visually handicapped at all levels from club to international. BRITISH WIRELESS FOR THE BLIND - 34 New Road, Chatham, ME4 4QR. Tel 01634 832 501/Fax 01634 817 485. Supplies radios, radio-cassette recorders and television sound receivers on free permanent loan to those who are registered blind. CALIBRE – Aylesbury, HP22 5XQ. Tel 01296 432 339/Fax 01296 392 599. Free postal library of unabridged recorded books on standard audio cassette. CLEARVISION – 61 Princes Way, London, SW19 6JB. Tel 020 8789 9575. Postal lending library of children’s books with added braille text suitable for sighted and visually-impaired people to share. CONFEDERATION OF TRANSCRIBED INFORM-ATION SERVICES – 67 High Street, Tarporley, Cheshire, CW6 0DP. Tel 01829 733 351/Fax 732 408. To improve the provision of information in formats other than print. Guidelines. www.cotis.org.uk ELECTRONIC AIDS FOR THE BLIND – Suite 4b, 71-75 High Street, Chislehurst, Kent, BR7 5AG. Tel 020 8295 3636/Fax 8295 3737. www.eabnet.org.uk admin@eabnet.org.uk GUIDE DOGS FOR THE BLIND – Hillfields, Burghfield Common, Reading, RG7 3YG. Tel 01189 835 555/Fax 0118 9835 433. Guide dogs and training, rehabilitation, also other various activities to enhance the quality of life of visually impaired people. LIVING PAINTINGS TRUST (THE) – Unit 8, Kingsclere Park, Kingsclere, Newbury, RG20 4SW. Tel/Fax 01635 299 771. Albums of tactile represent-ations of works of art/adapted children's books via a free library service to the visually handicapped. Sae. LOOK (National Federation of Families with Visually Impaired Children) – Queen Alexandra College, 49 Court Oak Road, Harborne, Birmingham, B17 9TG. Tel/Fax 0121 427 9800. Information and support. Education/benefits. Network of parent support groups. MOBILITY AID AND GUIDE DOG ALLIANCE – Thomas Richardson, 1 Palmer Road, Carlisle, CA2 7NE. Tel 01228 539 523 Training of guide dogs and their use. Training in the use of other mobility aids. NATIONAL BLIND CHILDREN’S SOCIETY – NBCS House, Market Street, Highbridge, Somerset, TA9 3BW. Tel 01278 764764/Fax 01278 764790. www.nbcs.org.uk enquiries@nbcs.org.uk NATIONAL LIBRARY FOR THE BLIND – Far Cromwell Road, Bredbury, Stockport, Cheshire, SK6 2SG. Tel 0161 355 2000/Fax 0161 355 2098. 350,000+ books in braille and moon. Free service for anyone. www.nlbuk.org enquiries@nlbuk.org NATIONAL MUSIC FOR THE BLIND – Derek Mills, 2 High Park Road, Southport, PR9 7QL. Tel 01704 228 010. Stores over 5 million musical recordings. Also offers ‘Radio’ on cassette. http://www.yell.co.uk/sites/music-for-the-blind PARTIALLY SIGHTED SOCIETY – PO Box 322, Doncaster, DN1 2XA. Tel 01302 323 132. Low vision assessment and training, advice and information, range of lenses, lighting, electronic equipment and literature. Oculus Newsletter. ROYAL NATIONAL COLLEGE FOR THE BLIND – College Road, Hereford, HR1 1EB. Tel 01432 265 725/Fax 353 478. UK’s leading college for the blind or partially sighted. www.mcb.ac.uk md@mcb.ac.uk/ ROYAL NATIONAL INSTITUTE FOR THE BLIND – 224 Great Portland Street, London, W1N 6AA. Helpline 0345 669 999/Tel 020 7388 1266/Fax 020 7388 2034. Offers a range of services. Advice. SEE-SAW – 12 Compton Park Road, Mannamead, Plymouth. PL3 5BU. Tel 01752 261 609. For families of visually impaired children. Support, advice and information. Specialist equipment for the home to enhance educational and social opportunities. TALKING NEWSPAPER ASSOCIATION OF THE UK – National Recording Centre, 10 Browning Road, Heathfield, TN21 8DB. Tel 01435 866 102/Fax 01435 865 422. Over 200 newspapers and magazines on tape for the visually impaired and disabled people. TELEPHONES FOR THE BLIND – Mr J Culling, 7 Huntersfield Close, Reigate, Surrey, RH2 0DX. Tel/Fax 01737 248 032. VISION AID – 106 Junction Road, Deane, Bolton, BL3 4NE. Tel 01204 64265. Supporting visually impaired children and their families. Information and reference library, toy loan, visual stimulation and hi-tech equipment. visionaid@charity.vfree.com VOLUNTARY TRANSCRIBERS' GROUP – 8 Segbourne Road, Rubery, Birmingham, B45 9SX. Tel 0121 453 4268. Transcribes from print to Braille anything which is technically possible. · BONE DYSPLASIA contact Bone Dysplasia Group c/o Child Growth Foundation under Growth · BONNEVIE-ULLRICH SYNDROME contact Turner Syndrome Group c/o Child Growth Foundation under Growth · BOWEL DEFECTS AND ABNORMALITIES (including gastroschisis and exomphalos) GEEPS – Tracey Evans, 104 Riversdale Road, Romford, Essex, RM5 2NS. Tel 01708 738 134. · BRACHIAL PLEXUS PARALYSIS see under Erb’s Palsy · BRAIN INJURED ADVANCE (Institute for Advanced Neuromotor Rehabilitation – Ryton House, Primrose Lane, Forest Row, RH18 5LT. Tel 01342 311 137/Fax 305 159. Strategically organised program to restore develop-ment of the central nervous sytems. www.anr.org.uk ASSOCIATION FOR BRAIN DAMAGED CHILD-REN AND YOUNG ADULTS – Pat Llewllyn, Clifton House, 3 St Paul’s Road, Foleshill, Coventry, CV6 5DE. Tel 024 76665 450. Short term respite care for children and residential care for young adults. BRAIN INJURY REHABILITATION TRUST – 397a Midsummer Boulevard, Milton Keynes, MK9 3HP. Tel 01908 230 300. Rehabilitation for adults who have acquired brain injury. Works towards the highest possible level of social integration. BRAINWAVE – David Davies, Huntworth Gate, Bridgwater, Somerset, TA6 6LQ. Tel 01278 429 089/Fax 429 622. Individual programmes of rehabil-itation and development for brain injured persons. BIBIC (British Institute for Brain Injured Children) – Knowle Hall, Bridgewater, TA7 8PJ. Tel 01278 684 060/Fax 01278 685 573. Helps children with learning difficulties or disabilities. info@bibic.org.uk RESCUE (The Foundation for the Brain Injured Infant) – Pigeonsford, Llangrannog, Llandysul, Ceredigion, SA44 6AF. Tel 01239 652 100/Fax 652 101. Information for parents, carers, healthcare prof-essionals. www.babybrains.org rescue@babybrains.org · BRAIN TUMOUR BRAIN TUMOUR FOUNDATION – Judith North, PO Box 162, New Malden, Surrey, KT3 4NH. Tel/Fax 020 8336 2020. btf@virgin.net BRITISH BRAIN TUMOUR ASSOCIATION – 2 Oakfield Road, Hightown, Merseyside, L38 9GQ. Tel 0151 929 3229. UK BRAIN TUMOUR SOCIETY – BAC House, Bonehurst Road, Horley, Surrey, RH6 8QG. Tel 01293 781 479/Fax 01293 820 720. Support and information for those touched, directly or indirectly, by brain tumours. Raises awareness and funds research. www.braintumour.org info@braintumour.org · BREUGHAL SYNDROME see Dystonia Society under Dystonia · BREVICOLLIS contact Klippel-Feil Syndrome c/o CaF under Family · BRONCHIECTASIS/BRONCHITIS see British Lung
Foundation under Lung · BRISSAUD SYNDROME see under Tourette Syndrome · BRITTLE BONE BRITTLE BONE SOCIETY – Morna Wilson, 30 Guthrie Street, Dundee, DD1 5BS. Tel 01382 204 446/7/Fax 01382 206 771. Offers practical help, information and advice. Sae. · BROAD THUMB/GREAT TOE SYND-ROME see under Rubinstein-Taybi Syndrome · BRUTON’S DISEASE contact Primary Immuno-deficiency Association under Immune Deficiency Syndromes. Also Geneveve Fulper (USA) willing to talk to parents 804-582-1211 geneveve2@aol.com · BULIMIA see Eating Disorders Association
under Eating Disorders · BULLOUS PEMPHIGOID BULLOUS PEMPHIGOID SUPPORT GROUP – 17 Barley Mount, Redhills, Exeter, EX4 1RP. · BULLSEYE DYSTROPHY see under Retinitis Pigmentosa · BULLYING/SCHOOL PHOBIA see also ParentLine Plus under Parents BULLY ALERT UK – Rosalie Everatt, 33 Kingsdown Park, Tankerton, Kent, CT5 2DT. Tel/Fax 01227 277 993. KIDSCAPE – 152 Buckingham Palace Road, London, SW1W 9TR. Tel 020 7730 3300/Fax 020 7730 7081. Committed to keeping children safe from bullying and abuse. Helpline 10am-4pm for parents of children being bullied. Please send 60p A4 sae. For both bullying at school and bullying at work see the excellent web site at www.bullycide.com · BULLYING AT WORK MSF CAMPAIGN AGAINST BULLYING – 40 Bermondsey Street, London, SE1 3UD. Tel 020 7939 7000/Fax 020 7357 6425. WORKPLACE BULLYING – PO Box 67, Didcot, Oxfordshire, OX11 9YS. Helpline 01235 212 286. Sae please. Provides information/practical advice on dealing with bullying. www.successunlimited.co.uk/ · BURNS see Skinship under Dermatological Problems · BUTTERFLY DYSTROPHY see under Retinitis Pigmentosa |
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