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| A B C D E F G H I J K L M N O P Q R S T U V W X Y Z Information supplied by g-text. Buy the print version of the catalogue for only £10 from this address: � ABDUCTED CHILDREN see Reunite and Both Parents Forever under Family � ABORTION see under pregnancy advice � ABUSE see also under violence in the home ACTION ON ELDER ABUSE � Astral House, 1268 London Road, London, SW16 4ER.� Tel 020 8764 7648/Fax 020 8679 4074/Helpline 0808 808 8141.� Informtion and emotional support for those concerned about the abuse of an elder persson.� Leaflets, videos etc, sae please.� www.elderabuse.org��� aea@ace.org.uk VOICE UK � Rm B11, The College Business Centre, Uttoxeter New Road, Derby, DE22 3WZ.� Tel 01332 519 872/Fax 01332 521 392.� Telephone help and information for people with learning disabilities who have experienced crime or abuse. � ACHONDROPLASIA contact Bone Dysplasia Group c/o Child Growth Foundation and Restricted Growth Association (both under Growth) � ACNE (AND ROSACEA) ACNE SUPPORT GROUP � Howard House, The Runway, South Ruislip, Middlesex, HA4 6SE.� Tel 020 8841 4747.� Support and information for people who are affected by either acne or rosacea.� www.stopspots.org/��� alison@the-asg.demon.co.uk � ACOUSTIC NEUROMA see also under Meningioma BANA (British Acoustic Neuroma Association) � Yvonne Colebourne, Oak House, Ransom Wood Park, Mansfield, Notts, NG21 0HJ.� Tel 01623 632 143/Fax 01623 635 313.�� www.ukan.co.uk/bana/ � ACROFACIAL DYSOSTOSIS see under Nager Syndrome � ACROMELAGY contact Pituitary Foundation � ACUTE ANXIETY DISORDER see under Phobias � ACUTE IDIOPATHIC POLYNEURITIS contact GBS Support Group under Guillaine-Barre � ADAMS-OLIVER SYNDROME ADAMS-OLIVER SYNDROME SOCIETY � Mrs Sandra Ivins, 16 Kirton Close, Radyr Way, Llandaff, Cardiff, CF5 2BE.� Tel 01244 830 592. � ADDISON'S DISEASE ADDISON'S DISEASE SELF HELP GROUP � Deana Kenward, 21 George Road, Guildford, Surrey, GU1 4NP.� Tel/Fax 01483 830 673.� Group provides support and advice, information, regular newsletter etc.� Large sae please.��� deana@adshg.freeserve.co.uk � ADIPOGENITAL SYNDROME contact LMBBS � Laurence-Moon-Bardet-Beidl Syndrome � ADOPTED ADULTS see NORCAP (below) � ADOPTION AND FOSTERING ADOPTION UK � Philly Morrall, Lower Boddington, Daventry, NN11 6YB.� Tel 01327 260 295Fax 263 565.� For prospective and existing adoptive families.� Offers information, advice and support.� Sae please. BRITISH AGENCIES FOR ADOPTION AND FOSTERING � Skyline House, 200 Union Street, London, SE1 0LX.� Tel 020 7593 2000/Fax 020 7593 2001.� For children separated from birth parents.� Information, advice, training, family-finding, child placement.� www.baaf.org.uk��� mail@baaf.org.uk CATHOLIC CHILDREN�S SOCIETY CRUSADE OF RESCUE � 73 Charles Sq, London, W10 6EJ.� Tel 020 8969 5305/Fax 8960 1464.� Adoption services, family support, childcare services and counselling.�� www.cathchild.org.uk�� info@cathchild.org.uk NCH ACTION FOR CHILDREN � 85 Highbury Park, London, N5 1UD.� Tel 020 7226 2033/Fax 020 7226 2537.� Family network Careline on 020 8514 1177.� Fostering and adoption, counselling, family support services, holidays and residential homes. NATIONAL FOSTERCARE ASSOCIATION � 87 Blackfriars Road, London, SE1 8HA.� Tel 020 7620 6400. Information, training and consultancy for those involved in foster care.� nfca@fostercare.org.uk NORCAP (National Organisation for Counselling Adoptees and Parents) � 112 Church Road, Wheatley, OX33 1LU.� Tel 01865 875 000/Fax 01865 875 686.� Support and advice.� Contact register held since 1982.� Large sae please.� enquiries@norcap.org POST ADOPTION CENTRE � 5 Torriano Mews, Torriano Av, London, NW5 2RZ.� Tel 020 7284 0555/ Fax 7482 2367.� Post adoption support and counsell-ing for adoptive families/adopted people/birth parents. TALKadoption � 12-14 Chapel Street, Manchester, M3 7NN.� Helpline 0808 808 1234 (Mon-Fri 3-9pm).� Tel 0161 819 2345/Fax 0161 832 2242.� Confidential service up to the age 25 with an adoption connection.� www.talkadoption.org.uk��� admin@talkadoption.org.uk � ADOPTION � FROM ABROAD AFAA � Peter and Fran Troth, Buena Vista, Harford Wood, Droitwich, Worcs, WR9 0EZ.� Tel 01905 620 005.� Provides information for those people who are interested in adopting children from abroad.� Also supports the adoptive parents of children from abroad. OASIS � Dan Y Graig, Balaclava Road, Glais, Swansea, SA7 9HJ.� Tel 01792 844 329.� Information service for those people who are wishing to adopt children from third world orphanages. � ADOPTION � NATURAL MOTHERS NATURAL PARENTS NETWORK � 3 Ashdown Drive, Mosley Common, Tyldsley, Manchester, M28 1BR.� Information and support for birth families and relatives whose lives have been affected by adoption. � ADRENOLEUKODYSTROPHY ATTIA RESEARCH TRUST INTO ALD � 36 Baker Street, London, W1M 1DG.� Tel 020 7224 7112.� Provides a support and information service for the sufferers of adrenoleukodystrophy, Schilder�s disease and sudanophilic leukodystrophy. � AGAMMAGLOBULINAEMIA X-LINKED see under Immune Deficiency Syndromes � AGORAPHOBIA see under Phobias � AGYRIA see under Lissencephaly � AICARDI SYNDROME also CaF under Family CORPAL � John Cope-Faulkner, 88 Reepham, Arton, Brimbles, Peterborough, PE2 5TT.� Tel 01733 760 912.� Information and advice for families of a child with corpus callosum, including Aicardi�s Syndrome. � AIDS see under HIV � ALAGILLE SYNDROME see Children�s Liver Disease Foundation under Liver � ALBINO ALBINISM FELLOWSHIP � Mark Sanderson, PO Box 77, Burnley, BB11 5GN.� Tel 01282 771 900.� Advice and support.� E-mail m.sanderson@virgin.net� http://www.albinism.org.uk � ALCOHOLISM ACCEPT � 724 Fulham Road, London, SW6 5SE.� Tel 020 7371 7477.� Educational support and funding of research into addiction.� Workshops and seminars. ADAPT (Alcohol and Drug Addiction Prevention and Treatment) � 6 Langley Street, London, WC2H 9JA.� Tel 020 7240 4026/Fax 020 74027.� Treatment centres for people with alcohol and drug problems. AL-ANON FAMILY GROUPS � 61 Great Dover Street, London, SE1 4YF.� Tel (24 hour confidential line) 020 7403 0888/Fax 020 7378 9910.� Local self-help groups for the families and friends of problem drinkers.� www.hexnet.co.uk/alanon��� alanonuk@aol.com ALATEEN � As for Al-Anon above.� 12-20 year olds affected by someone else's drinking, usually a parent. ALCOHOLICS ANONYMOUS � PO Box 1, Stonebow Hs, Stonebow, York, YO1 7NJ.� Tel 01904 644 026.� Leaflets/booklets/newsletter.� Helpline 0845 769 7555.� www.alcoholics-anonymous.org.uk ALCOHOL CONCERN � Waterbridge House, 32-36 Loman Street, London, SE1 0EE.� Tel 020 7928 73 77/Fax 020 7928 46� 44.� Information, factsheets, mail order, Directory.� Web page www.alcoholconcern.org.uk ALCOHOL RECOVERY PROJECT � 68 Newington Causeway, London, SE1 6DF. Tel 020 7403 33 69.� Provides information and advice on alcohol problems. INSTITUTE OF ALCOHOL STUDIES � Alliance House, 12 Caxton Street, London, SW1H 0QS.� Tel 020 7222 58 80.� Very wide range of fact sheets on alcohol.� www.ias.org.uk��� info@ias.org.uk NATIONAL ASSOCIATION FOR CHILDREN OF ALCOHOLICS PO Box 64, Fishponds, Bristol, BS16 2UH.� Tel/Fax 0117 924 8005, Freephone 0800 358 3456.� Advice for children of alcoholics. SCOTTISH COUNCIL ON ALCOHOL � 166 Buchanan Street, Glasgow, G1 2NH.� Advice on alcohol and sensible drinking.� Tel 0141 333 9677. TACADE (The Advisory Council on Alcohol and Drug Education) � 1 Hulme Place, The Crescent, Salford, Manchester, M5 4QA.� Tel 0161 745 89 25.� A range of high quality materials and resources, especially useful for teachers.� Highly recommended! TEETOTALLERS REGISTER � Wendy Whitehead, 9 The Lodge, 3 Blackwater Road, Eastbourne, BN21 4JF.� Tel 01323 638 234.� Support to those wishing to abstain totally from alcohol.� Offers social gatherings, retreats and counselling.� Press enquiries welcome. � ALEXANDER TECHNIQUE PATT (Professional Association of Alexander Teachers) � Carol Taylor, 20 High Street, Norton, Stockton-on-Tees, TS20 1DN.� Tel 01642 363542. www.paat.org.uk���� Cta1226987@aol.com � ALLERGY AAA (Action Against Allergy) � Patricia Schooling, PO Box 278, Twickenham, TW1 4QQ. �Large sae for information packs/advice on the nearest allergy clinic or specialist.� Membership of �15 provides newsletter. ANAPHYLAXIS CAMPAIGN � David Reading, PO Box 149, Fleet, GU13 0FA.� Tel 01252 542 029/Fax 377 140.� Support and guidance.� Raising awareness of food allergies in the food industry.� Large sae. ASSOCIATION FOR ALLERGIC DISORDERS � Mrs Christine Barker, 24 Chiltern Road, Ramsbottom, Bury, BB11 9LF.� Tel 01706 828 256 (evenings only).� Support, information and advice. BRITISH ALLERGY FOUNDATION � Deepdene House, 30 Bellegrove Road, Welling, DA16 3PY.� Tel 020 8303 8525/Fax 020 8303 8792.� Helpline 020 8303 8583 Mon-Fri 9am-5pm.� Support and inform-ation.� Large (C4) �1 sae for a range of leaflets. FOOD & CHEMICAL ALLERGY ASSOCIATION � Ellen Rothera, 27 Ferringham Lane, Ferring, West Sussex, BN12 5NB.� Advisory service, publications include "Understanding Allergies" for �2 plus sae. NATIONAL SOCIETY FOR RESEARCH INTO ALLERGY � Mrs E Rose, PO Box 45, Hinckley, LE10 1JY. Tel 01455 250 715.� Advice on all types of allergy and intolerance, including hyperventilation.� Leaflets.� Magazine.��� n.s.r.a.allergy@virgin.net THE BRITISH INSTITUTE FOR ALLERGY AND ENVIRONMENTAL THERAPY � Ffynnonwen, Llangwyryfon, Aberystwyth, SY23 4EY.� Tel 01974 241 376/Fax 241 795.� List of UK registered allergy therapists.� www.allergy.org.uk��� allergy@onetel.net � ALOPECIA see under Hair Loss � ALPERS DISEASE contact The Children�s Mito-chondrial Disease Network under Mitochondrial Disease � ALPHA 1 - ANTITRYPSIN DEFICIENCY ALPHA 1 SUPPORT � 5a Kennersdene, Tynemouth, NE30 2NB.� Tel 0191 257 0358.� Information, support and advice for patients, their families and doctors.� www.alpha1.org.uk��� ian.k.rowan@onyxnet.co.uk � ALPHA THALASSAEMIA ATR-X SUPPORT GROUP � Denise Walker, 82 The Crescent, Northwich, Cheshire, CW9 8AD.� Tel 01606 44943.� Information, support and contact. � ALSTOM SYNDROME ALSTROM SYNDROME UK � 49 Southfield Av, Paignton, Devon, TQ3 1LH� Tel/Fax 01803 524 238.� Support to parents and professionals.� Annual family conference.� Newsletters.� www.alstrom.org.uk � ALTERNATING HEMIPLEGIA ALTERNATING HEMIPLEGIA � Mrs G Bailey, 80 London Road, Datchet, Slough, SL3 9LQ.� Tel 01753 546 268.� Provides information, contact and support. � ALZHEIMER'S DISEASE see under Dementia � AMPUTATION see BLESMA under Disability � AMSTERDAM DWARFISM see under Cornelia de Lange � AMYOLASIA CONGENITA see under Arthrogryposis � AMYOTROPHIC LATERAL SCLEROSIS contact Motor Neurone Disease Association under Motor Neurone � ANAPHYLAXIS see under Allergy � ANDERSEN SYNDROME contact Association for GSD under Glycogen Storage Disease � ANDERSON-FABRY DISEASE see Fabry�s Disease Research Group under Fabry�s Disease � ANDROGEN INSENSITIVITY ANDROGEN INSENSITIVITY SYNDROME SUPP-ORT GROUP � Lynn Thomas, PO Box 269, Banbury, Oxfordshire, OX15 6YT.� Helpline 01295 670 140.� National network of contact families.� Information. www.medhelp.org/www/ais � ANENCEPHALY ANENCEPHALY SUPPORT GROUP � Debra Lindesay, 29 Hawkwood Close, Malvern, Worcester-shire, WR14 1QU.� Tel 01684 573 974 (10am - 6pm).� Support and information.� Large sae please. � ANGELMAN SYNDROME ANGELMAN SYNDROME SUPPORT GROUP � Mrs S Woolven, 15 Place Crescent, Waterlooville, Portsmouth, PO7 5UR.� Tel 023 92264 224. ASSERT � PO Box 505, Sittingbourne, Kent, ME10 1NE.� Tel/Fax 01980 652 617.� Provides services, advice and information.� assert@dial.pipex.com � ANKYLOSING SPONDYLITIS NATIONAL ANKYLOSING SPONDYLITIS SO-CIETY � PO Box 179, Mayfield, TN20 6ZL.� Tel (24hr) 01435 873 527/Fax 01435 873 027.� Support and information.� www.nass.co.uk��� nass@nass.co.uk � ANORCHIDISM ANORCHIDISM SUPPORT GROUP � Lorraine Bookless, PO Box 3025, Romford, Essex, RM3 8GX.� Tel 01708 372 597.� Support and information on treatment and research.� E-mail� asg.uk@virgin.net http://community.nj.com/cc/anorchidismsupportgroup � ANOPHTHALMIA see under Micropthalmia � ANORCHIA see under Anorchidism (above) � ANOREXIA see under Eating Disorders � APERTS SYNDROME contact Craniofacial Support Group under Craniofacial � APHASIA also Stroke Association under Stroke SPEAK ABILITY � 1 Royal Street, London, SE1 7LL.� Tel 020 7261 9572/Fax 020 7928 9542.� Helpline 080 8808 9752.� Information and advice.� www.speakability.org.uk��� info@speakability.org.uk � ARACHNOIDITIS ARACHNOIDITIS TRUST � Kim Nevitt, PO Box 27, Stoneycroft, Liverpool, L13 5RS.� Tel 0151 259 0222.� Self help group offering support and advice. � ARMED FORCES AT EASE � 28 Commercial Street, Aldgate East, London, E1 6LS.� Tel 020 7247 5164.� Autonomous organisation providing non-directive counselling and information for ex-members of the armed forces and their families.� atease@advisory.freeserve.co.uk � ARTHRITIS see also under Listening Books ARTHRITIS RESEARCH CAMPAIGN � PO Box 177, Chesterfield, S41 7TQ.� Tel 01246 558 033/Fax 558 007.� Large sae for free information sheets and booklets.� info@arc.org.uk ARTHRITIC ASSOCIATION (THE) � 2 Hyde Gardens, Eastbourne, BN21 4PN.� Dedicated to relief of arthritis by natural methods based on dietary guidance, homeopathic and herbal preparations.� Sae. ARTHRITIS CARE (+ YOUNG ARTHRITIS CARE) � 18 Stephenson Way, London, NW1 2HD.� Tel 020 7916 1500/Fax 020 7916 1505.� Local groups, Home Visiting Scheme, magazine, leaflets and booklets, holiday service, information.� Helpline 0800 289 170. CHILDREN�S CHRONIC ARTHRITIS ASSOC-IATION � 47 Battenhall Avenue, Worcester, WR5 2HN.� Tel/Fax 01905 763 556.� Support and advice for children with arthritis and their families.� Newsletter.� Educational and recreational projects. GRACE (Give Rheumatoid Arthritis Children En-couragement) � 50 Wood Street, St Annes, Lancs, FY8 1QG.� Tel 01253 720 303/Fax 01253 728 070.� Supporting sufferers of juvenile rheumatoid arthritis/parents.���� www.Fyldecoast.co.uk/grace/grace HORDER CENTRE FOR ARTHRITIS � John Ball, St John�s Road, Crowborough, East Sussex, TN6 1XP.� Tel 01892 665 577/Fax 662 142.� Professional nursing care, orthopaedic surgical unit, hydrotherapy and physiotherapy.� arthritis@horder.co.uk LADY HOARE TRUST FOR PHYSICALLY DISABLED CHILDREN � 1st Floor, 89 Albert Embankment, London, SE1 7TP.� Tel 020 7820 9989/Fax 020 7582 8251.� Helping children with arthritis and limb disabilities lead full and independent lives.� info@lhtchildren.org.uk � ARTHROGRYPOSIS see also Lady Hoare Trust (above) TAG � Diana Piercy, 1 The Oaks, Gillingham, Dorset, SP8 4SW.� Tel/Fax 01747 822 655.� Provides advice and information, contact and support.� Newsletter. � ASBESTOSIS see under Industrial Diseases � ASTHMA see also British Lung Foundation under Lung ACTION ASTHMA PATIENT SERVICE � Allen & Hanburys Ltd, Department G, Freepost DR83, Ashford, Kent, TN24 0YX.� Tel 020 8990 3011. NATIONAL ASTHMA CAMPAIGN � Providence House, Providence Place, London, N1 0NT.� Tel 020 7226 2260/Fax 020 7704 0740.� Helpline 08457 010 203.� Working to conquer asthma through research, education and support.� www.asthma.org.uk � ASPERGILLOSIS contact British Lung Foundation under Lung � ATAXIA FRIEDREICH�S ATAXIA GROUP � 10 Winchester House, Kennington Park, Cranmer Road, London, SW9 6EJ.� Tel 020 7582 1444/Fax 020 7582 9444/Helpline 020 7820 3900.� Information advice, support to sufferers, families, carers and professionals. � ATAXIA-TELANGIECTASIA ATAXIA-TELANGIECTASIA SOCIETY � Mrs Maureen Poupard, c/o IACR, Rothampstead, Harpenden, Herts, AL5 2JQ.� Tel 01582 760 733.� Information, support and advice for families and professionals.� Fund-raising activities for research. � ATTACHMENT DISORDER ATTACHMENT DISORDER RESEARCH TRUST � Hurstwood Court, New Hall, Hey Road, Rawtenstall, BB4 6HR.� Tel 01706 227 226/Fax 01706 224 500. � ATTENTION DEFICIT HYPERACTIVITY DISORDER see also under Special Educational Needs and under Hyperactivity ADDNet UK 10 Troughton Road, Charlton, London, W7 7QH.� Tel/Fax 020 8305 1023. ADHD FAMILY SUPPORT GROUP UK � Mrs G Mead, 1a High Street, Dilton, Westbury, BA13 4DL.� Tel 01373 826 045/01380 726 710.� Free information and national contacts. � AURICULOVERTEBRAL SYNDROME see Goldenhar Syndrome � AUTISM AiA (Allergy Induced Autism Support Group) � 8 Hollie Lucas Road, Kings Heath, Birmingham, B13 0QL.� Tel 0121 444 6450.� Support and research into autism possibly triggered by food and/or chemical intolerance.� www.kessick.demon.co.uk/aia.htm AUTISM INDEPENDENT UK (formerly SFTAH) � 199-201 Blandford Avenue, Kettering, NN16 9AT.� Tel/Fax 01536 523 274.� Offers training, information, advice and support for parents, carers and professionals.� www.autism.com��� autism@autismuk.com NATIONAL AUTISTIC SOCIETY � 393 City Road, London, EC1V 1NE.� Tel 020 7833 2299/Fax 020 7833 9666.� Advice, information and support.� Training.� Promotes research into causes of autism. www.oneworld.org/autism_uk/��� nas@clus1.ulcc.ac.uk INTERNATIONAL AUTISTIC RESEARCH ORG-ANISATION � 49 Orchard Avenue, Shirley, Croydon, CR0 7NE.� Tel 020 8777 0095/Fax 020 8776 2362.� Conferences, referrals for assessment.� www.charitynet.org/~iaro /��� iaro@lineone.net |
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